Second European Cystic Fibrosis Network Building Conference

Welcome at our second CF European Network building Conference on June 9, 2008 in Prague (before the CF Worldwide meetings and the medical ECFS conference ). The primary aim of this meeting is to support patient network building and exchange, reinforce patient associations, define the needs and develop strategies to improve care and quality of life in Europe. The conference language will be English. The network building conference takes place The focus is on exchange of experiences and information. You will be able to participate in 3 workshops: on Building strong associations, access to care and fundraising.

Participation is free. The Czech CF association will offer a lunch and transport from the city centre. Although CF Europe can not pay for your travel and accommodation, we will try to help you to find sponsors and cheap hotels. So please let us know if you have finnacial or practical problems to attend. You can also let us know if you’re interested to share a room with another single to save hotel costs.

Deadline for registration is May 10, 2008.

Please let us know as soon as possible if you will be able to participate, so we can organize the meeting as well as possible.

The following overview may help you to find your way through all the CF meetings in Prague next June:

*CFW package: pay and register through CF Worldwide: here

For more information and registration for the CFE meetings please contact: Birgit Dembski, CFE secretary, bdembski@muko.info or me via karleen@muco.be

We look forward to meeting you in Prague!