Cystic Fibrosis Europe

Second CF European Network building Conference

Second European Cystic Fibrosis Network Building Conference

JUNE 9, 2008, PRAGUE, CZECH REPUBLIC

9.30 – 9.40:	Welcome
9.40 – 10.40:	CF in your country (each participating association is invited to present CF in their country; max 5 minutes/country)
10.40- 11. 00:	Break
11.00 – 12.30:	Building a strong CF association - Introduction : Patient associations and patient participation - Workshop 1 (group discussion and exchange): • Organisation of a CF association • How to involve parents and patients • Support and services for families and adults • Collaboration with health professionals
12.30 – 13.30:	Lunch
13.30 –14.00:	Introduction to workshop session 2 • Access to care • Fundraising
14.00-15:	2 parallel workshops (participants are split in 2 groups) • WS 2: Access to care • WS 3: Fundraising
15.00 – 15.30:	Break
15.30 – 16.30:	2 parallel workshops (each group changes to second topic) • WS 2: Access to care • WS 3: Fundraising
16.30-17.30:	European collaboration • European Awareness Day 2008 and 2009 (EU event) • Young Investigator’s Meeting • ECORN-CF • EurocareCF • ECFS Clinical trial Network
17.30 – 18.00:	Summing-up of the day’s results