All over Europe local associations, CF patients and families organized events to make people aware and to get more support
for the fight against Cystic Fibrosis. In this list you find a selection of the events we have been informed about.
Country |
Activity |
Organization |
| Belgium |
Media Campaign;
Meeting in the European parliament;
EU premiere Opera-Musical Some Sunny Night |
CF Europe
Belgian CF Association |
| Czech Republic |
• Media campaign: newspapers and television-8 minutes on National TV to talk about CF and the upcoming 1st European CF Awareness Day!
• Benefit performance in Dejvicke Theatre: “A Streetcar Named Desire” by Tennessee Williams |
Czech CF Association |
| FYRMacedonia |
Political and media campaign (TV and newspapers) |
CF Macedonia |
| Greece |
Information and political campaign (incl. publication and distribution of CF Booklet) |
CF Greece |
| |
• Press conference
• Meeting where more than 700 persons are invited (Parliament, ministries, hospitals, school teacher unions, public, etc) to inform about the problems that patients and families face |
HCFA |
| Italy |
Awareness and information campaign CF |
Italy (LIFC) |
| Netherlands |
Political and media campaign |
CF Netherlands (NCFS) |
| |
CD sale for CF Europe |
Jesse (13y) & Hanah (11y) |
| Poland |
Medical Conference „Cystic Fibrosis - contemporary rules of diagnosis” in Krakow |
Matio Foundation |
| Romania |
• Article in the national medical review "Medical Life", No.47, XVIII, 24
• Publication of new book " Guidelines for the management of CF" (Timisoara National CF Centre and the National CF Working Group) |
Romanian CF Association |
Russia
Moscow |
• Several publications in the central press.
• Several TV presentations including one on the central Russian TV channel.
• Several famous theatre players are thinking on how they can help our patients and the representatives of the Russian Orthodox Church have been involved
• The information about the CF Awareness Day was spread among all our regional CF centers |
Prof. Nikolai Kapranov and Dr. Nataliya Kashirskaya Russian CF Centre, Research Centre for Medical Genetics RAMS, Moscow |
Russia
St. Petersburg |
CF conference for state employees, physicians and CF parents in St. Petersburg and another big city of Russia organized by ROCHE-Moscow |
The Organization for Care of CF Patients, St. Petersb. |
Russia
Yaroslavl |
• Programs on TV and Radio from November for 10 days with specialists, CF patients and their parents took part in these programs.
• Information about patients and their problems in local newspapers and on websites.
• Every ten minutes a reel about the 1st European CF Awareness day on the big screens in the street.
• Activity with more than 80 children and youngsters, 25 of them are CF patients |
CF Yaroslavl
(With support of authorities) |
| Serbia |
• Poster awareness campaign
• Several TV presentations in various towns where the patients, doctors and parents shall talk about CF issues.
“On the basis of your initiative, this is the first time that patients and parents appear in public with this problem in an attempt to acquaint the broader community with this disease.” |
CF Association of the Republic of Serbia |
| Slovak Republic |
• Media campaign: several live appearances on National TV and info in major newspapers, on national and regional radio and on the internet
• Distribution of flyers about CF
• Fundraising campaign
• Press conference and mini CF conference in Bratislava |
CF Slovak republic (klubcf) |
| Spain |
Political and media campaign |
CF Association Spain |
| Sweden |
• Distribution of flyers about CF in different shopping centers in Gothenburg
• Media: article about CF (2 pages) in the local newspaper (500 000 subscribers) and local TV |
CF Sweden |
| Switzerland |
• Media campaign
• Broadcast on 2 important TV-stations |
CF Switzerland
Schweizerische Gesellschaft
für Cystische Fibrose |
| UK |
Press release |
CF Trust UK |
