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First European Cystic Fibrosis Awareness Day - 21 November 2006
Enthusiastic reactions from all over Europe
“I`m impressed by a huge job you made for CF. Thank you very much for inviting me and my daughter (with CF). She is fascinated by all what happened during those 2 days. Everybody was so nice to her!”
Alicja Rostocka, Poland
“I attended the Musical last night and wanted to thank you for this marvelous evening!”
Staff European Parliament
“In the Slovak Republic the media campaign has been very successful and interesting too, with live appearances on national TV in prime time and info in major newspapers, radio, internet...!”
Jaro Lexa, Klub cystickej fibrozy Slovak Republic
“I didn’t know anything about this disease but now I know what CF is. I think you’re doing very important work and wish you good luck”
Assistant to MEP
“Thank you to everybody in the CF organization for making the "impossible possible" at the EU premiere of Some Sunny Night! We are so happy that the whole event was a big success, and on behalf of all artists, TV-crew and involved people, we send our warmest regards and thank you for a great arrangement in Brussels.”
Thomas Stanghelle, composer
“You have done such a good job that I miss words! Thank you!!!!”
Ulrica Sterky, CF Sweden and CF Worldwide
“Once more congratulations for all the work you did to make this day a success. It was a pleasure to join the activities in Brussels.”
Paul Gevaerts, NCFS, CF Netherlands
“I am very happy that the first CF day was so successful. I am sorry I couldn't be there with you but I think that the most fantastic thing on it was how you managed to organize everything. I also believe that it will bring some good results in future. We had our beneficial theatre performance which was very nice and brought us some money and awareness of CF in public which we need a lot in our work.”
Helena Holubova; CF Czech Republic
“… a fantastic job planning and carrying through a great CF day in Brussels! To manage to do this after three and a half year with CFE I think is very impressive. Prof. Marie Johannesson (ECFS) and Mr. Einar Steensnæs (UNESCO) were very satisfied with the day, Mr. Steensnæs sais he and UNESCO learned a lot about CF that day. He even wrote a report about our day on the Norwegian UNESCO website: www.unesco.no”
Ingvar Froyland, CF Norway
“Well done on what must have been an enormous logistical nightmare. Next year we will do more now that there is a confirmed annual date. This year we just had too much on.
Some good news on our side that same week we were allocated an additional €2m in the government’s budget estimates for 2007… Now with this process underway our focus will shift to facilities… It has been a very hard uphill fight but for the first time I feel that there could be some light at the end of the tunnel!”
Godfrey J. Fletcher,The Cystic Fibrosis Association of Ireland
“Your efforts were well placed! I am sure this will be a resounding impact for CF patients in Europe.”
Christine Noke, USA, CF Worldwide
“We tried to celebrate the European CF Awareness Day as well with the distribution of medical information. We find the decision to have a specific day devoted to CF very special."
Prof. Ioan Popa, President of the Romanian CF Association”
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