WHO guidelines for the diagnosis and management of cf

This publication is intended primarily for pediatrician, physicians and other health professionals involved in the diagnosis and care of patients with cystic fibrosis. Few diseases illustrate more vividly the inequalities in knowledge, practice and resources which exist between the health services of affluent, 'developed' countries and those at an earlier stage of 'development'.

Manual for cf patients and their parents

This Manual is designed to help Cystic Fibrosis patients and their parents to have a better understanding of Cystic Fibrosis as a disease. It has been produced jointly by the World Health Organization (WHO) and the International Cystic Fibrosis (Mucoviscidosis) Association (ICF(M)A), in response to requests for a simple document which is suitable for families in all countries who may have difficulty in attending a well-developed specialist CF clinic or obtaining detailed information about the disease.


* Available in English, Arabic, Turkish and Spanish.
Special thanks to the translators:
Heba Mohammad Shawky & Sabry Gameel Hameed
Burak Baytu - Contact: bbaytu@baytu.com - www.baytu-linguistics.com

Implementation of CF Services in developing countries

Although CF is a serious genetic disease which is widespread throughout the world, there are significant variations in incidence with relative sparing of the African and Oriental races. Although recognition of CF and provision of appropriate clinical services are well developed in Western Europe, the USA and Australia, there are large populations in whom the disease is infrequently recognized and inadequately treated, with consequent avoidable death and suffering in infancy, childhood and adult life.

Services for adults with Cystic Fibrosis

Cystic fibrosis is a genetic disease with significant variations in incidence, morbidity and mortality around the world. Although most often reported in white Caucasians, since discovery of the mutated gene in 1989 [4] it is also being diagnosed with increasing frequency in other populations, often with variant clinical expression.

WHO report classification of cf and related disorders

Making a diagnosis of Cystic Fibrosis (CF) is not always simple.1 Initially, CF was recognized as a clinical syndrome. Many diagnostic problems were resolved by the development of the sweat test in 1950.2 The test remains clinically reliable for most cases,3 but the occasional occurrence of false-negative and false-positive results has always been recognized.


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