What do we do? - World Health Organization

* What do we do?

* CFW Newsletter

* Education Program

* CFW/CFE Lay Seminar in Belek Turkey

* CF Medical Conference in Oman

* CF Educational workshop in Armenia

* World Health Organization

* Support for the development of CF Care in Armenia

* Cystic Fibrosis Europe (CFE)

* CF parent/patient workshop in India

* Evaluating our Outcomes

* The International Physiotherapy Group for CF (IPG/CF)

* Developing our Member Network

* Lobby the Government of Macedonia

* Support for the Yerevan University Hospital CF Centre

* Supporting Medical Staff at All India Institute of Medical Sciences

* Looking Ahead


	What do we do? - World Health Organization Cystic Fibrosis Worldwide (CFW) and the World Health Organization Human Genetics Department (WHO HGD) have been working in official relations since CFW's inception in 2003. The main priorities of this partnership are having Pancreatic Enzymes listed on the WHO Model List of Essential Medicines, to develop a Global CF Registry and through evaluations of CFW projects, publish a manual on developing CF associations and implementing CF care in developing countries. Cystic Fibrosis Worldwide has formed a committee to work in collaboration with WHO leaders and decisions makers. In 2007 CFW was able to complete the application to put pancreatic enzymes on the WHO Necessary Drug List and now work towards submitting this application in 2008. • WHO / CFW Publications • Getting pancreatic enzymes

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