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CFE
Cystic Fibrosis Europe

Contact Information
 Hilde De Keyser
 hilde@muco.be
 0032 - (0)2 61 32 716

Board Members

Standards of care

Interesting Links

The European Cystic Fibrosis Society (ECFS)

European Cystic Fibrosis Clinical Trial Network

European CF patient registry

IMPACTT.eu


The ECFS is a Society of European and international experts in all fields of CF research.
"The European Cystic Fibrosis Clinical Trial Network is a network of CF centers, aiming at intensifying clinical research in the area of cystic fibrosis and to bring new medicines to the patients as quickly as possible."
The "ECFSPR" is a registry holding data on CF patients throughout the European Union and some of the neighbouring countries over an extended period of time. Goals of the Registry are to increase the knowledge on CF, to determine clinical effectiveness of health care, for comparing and improving standards of care for CF patients, to support health care service planning and for research purposes.
The IMPACTT project will complete a clinical phase III trial, to demonstrate the critical preventive and therapeutic effects of a pioneering intervention therapy (based on the avian polyclonal Anti-Pseudomonas IgY formulation) for chronic infection of Pseudomonas aeruginosa in CF patients. To this, a parallel objective is to explore ways of meaningfully involving patients and family members into clinical CF research. The IMPACTT Project started on January 1st 2011 and is a collaboration between ten partners from six European countries, supported by the European Union Seventh Framework Programme.

Recommendations to avoid cross infections

Cystic Fibrosis Europe

WHAT IS CYSTIC FIBROSIS EUROPE?


Cystic Fibrosis Europe is the federation of national CF Associations in Europe.
CFE represents persons with CF and their families in Europe. It was founded at the European CF Conference in Belfast in 2003. Currently, national CF Associations from 39 European countries are member of CF Europe. CFE works in close collaboration with other international organisations and is an active partner in several European projects.


Our mission

a better and longer life for all people with Cystic Fibrosis in Europe

By building stronger CF associations throughout Europe and collaborating with all groups towards this goal, CFE works for better access to care and a better quality of life for every child and adult living with CF in Europe.


Our main objectives


  • to improve the quality of life of Cystic Fibrosis patients and their families
  • to represent and defend the interests of CF patients and families in all walks of life
  • to raise public awareness of the concerns of the CF patients and their families
  • to promote optimal diagnosis & treatment of Cystic Fibrosis in Europe
  • to provide a forum for discussion and exchange of views and experience on all issues related to Cystic Fibrosis
  • to promote patient oriented research

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Donations Welcome

In order to realise its objectives, CF Europe looks for funding via sponsoring, donations and subsidies.


Cystic Fibrosis Europe

Account number:
8 303 900
IBAN:
DE 87 370 20500 000 8303900
BIC-Code:
370 205 00 / BFS WDE 31


CFE has currently 39 member countries:

Annual Report