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March 12, 2011 - Awareness  10 years of joint fight against CF: 10th National Polish CF Week
Challenges and problems of families of mucoviscidosis patients are a leading topic of the 10th National Polish Mucoviscidosis Week that starts on 28th February under the motto “10 years of joint fight against mucoviscidosis”. The campaign was organized by Help Foundation for Mucoviscidosis Patients and their Families MATIO, with the support of Roche Polska.
March 5, 2010 - Campaigns IX National Week of Cystic Fibrosis
The situation of adult CF patients and the challenges lying ahead of the health care system in Poland in order to provide them with a complex health care – these are the leading topics of the IX National Week of Cystic Fibrosis opening on February, 22nd.
February 26, 2009 - Campaigns 8th Polish CF week - Rare Disease Day February 2009
This is already new edition of polish social campaign, which aim is to build awareness of Cystic Fibrosis – 8th Polish Nationwide Week of Cystic Fibrosis. The theme of the action in this year is “Cystic Fibrosis. Know more, treat better”. The campaign is patronaged by Ministry of Health. It is organized by Foundation for Help Families and Suffers for Cystic Fibrosis MATIO ( Polish CF Associaction MATIO) as regular, annual educational program concerning cystic fibrosis and genetic diseases.
November 1, 2007 - Events 2nd EUROPEAN CYSTIC FIBROSIS AWARENESS DAY
On 21 November 2007 Cystic Fibrosis Europe, a federation representing 30.000 patients in 30 European countries, organized its 2d “European CF Awareness Day”. Cystic Fibrosis (CF or mucoviscidosis) is the most frequent life threatening genetic disease in Europe. Sticky mucus blocks the respiration and digestion. Without an expensive and time consuming treatment children with CF suffocate! Although patients who have access to appropriate care can become 40 years and older, children who live in countries where the CF care is less developed or available still die at a very young age!
November 30, 2006 - Events Towards Equal Access to Appropriate Care For All CF Patients in Europe
Cystic Fibrosis (CF or Mucoviscidose) is the most frequent life threatening genetic disease in Europe. In some countries the median age at death of people with Cystic Fibrosis is more then 35 years, in other countries the majority of children die before their 5th birthday! Guidelines for best standards of care were developed to ensure appropriate treatment in Europe. In clinics where these guidelines are followed and appropriate care is provided life expectancy is now more then 40 years old. Most children have few symptoms and serious problems can be delayed until adulthood. In regions where the disease is not yet well known and access to appropriate care is poor, the life expectancy and quality of life are still very low.
June 13, 2006 - Events CF Europe organizes the first European Cystic Fibrosis Awareness Day
The goal of this CF Day will be to raise public awareness and political interest for the problems of persons confronted with CF on a European level. We want to promote optimal standards of care in all countries of the European Union. The average life expectancy for people with CF who have access to appropriate CF care is now 40 years. But in some regions a lot of patients die before they reach adolescence or adulthood. Especially the newer EU countries stress the importance of a European CF Day and stimulate us to move forward.
All over Europe awareness campaigns can take place from 17 till 26 November. National CF associations can join the ECFD or just mention it in within the frame of their own activities.
May 11, 2006 - Events First European Cystic Fibrosis Awareness Day - 21 November 2006
MAJOR SUCCESS ALL OVER EUROPE
Better awareness and more support for Cystic Fibrosis patients in Europe
“On the basis of your initiative, this is the first time that patients and parents appear in public in our country in an attempt to acquaint the broader community with this disease.” CF Serbia
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CRETE 2005
