First European Cystic Fibrosis Awareness Day - 21 November 2006

EU première Opera-Musical ‘Some Sunny Night’

The highlight of our awareness campaign was the EU première of Thomas Stanghelle’s opera-musical “Some Sunny Night” in Residence Palace in the European quarter in. This opera-musical is based on the true story of CF patient Ketil Moe and his handicapped Chinese friend, Mark Wang, who set up the “Run for Life" for both handicapped and healthy people. Ketil passed away after his 14th New York Marathon in 1999, almost 33 years old. His work and visions still live stronger than ever. The soloists from all over Europe, USA, China and other countries and the orchestra Camerata Con Cor(d)e conducted by Jaak Gregoor offered us unforgettable music of the highest level. The performance was beautiful; the concert hall was filled till the very last seat and the public was very enthusiastic... they're probably still singing the songs by now … Everything was recorded by the Norwegian television, there were reports on the 2 main national radio channels and it will be brought on Chinese television too.

Unesco and en Olympic IOC-president Jacques Rogge support the event. On Wednesday morning we were welcomed in the City Hall in Brussels by Deputy Mayor Bruno De Lille, who gave us a private tour in the beautiful, 15th century building.

But the European CF day was not only organized in Brussels, awareness campaigns were set up all over Europe. On our website you can find a short overview of activities in 15 countries, but each day we hear of new events that took place somewhere…

I hope all our activities were successful and will make lives of people with CF easier and better all over Europe!

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