Cystic Fibrosis Conferences
|
|
|
|
|
|
| |
Program Schedule
| 17 April 2009 | Day I |
| Medical Seminar |
| 09:00 –
9:30 |
Conference opens, Welcome
Prof. Efremov |
| 09:30 –
10:00 | Cystic Fibrosis, From Gene to Disease
Dr. Harry Heijerman, Pulmonologist, CFW Medical
Advisor | | 10:30 –
11:00 | Early Lung Disease, Diagnostics and
Monitoring
Dr. Ian Balfour-Lynn, Royal Brompton Hospital, London
UK | | 11:00 – 11:30 | Coffee
Break | | 11:30 – 12:00
| Prevention of Chronic Infection with PA
Dr. Steven Conway, Leeds Regional Adult CF Unit, UK |
| 12:00 – 12:30 |
Treatment of Chronic Pseudomonas Infections
Dr. Harry Heijerman, Pulmonologist, CFW Medical Advisor |
| 12:30 – 14:00 |
Lunch |
| 14:00 – 14:30 | Diagnosis
and Treatment of Pancreatic Insufficiency
Dr. Anne Munck,
Gastroenterologist, ECFS Board of Directors |
| 14:30 – 15:00 | European
Standards of Care, CF Centre Standards
Su Madge, CF Nurse, ECFS
and ING/CF | | 15:00 – 15:30 | Coffee Break
| | 15:30 – 16:00 |
Treatment of Pulmonary Exacerbations
Dr. Ian Balfour-Lynn, Royal Brompton Hospital, London UK |
| 16:00 – 16:30 | Inhaled Therapies (no antibiotics)
Dr.Steven Conway, Leeds Regional Adult CF Unit, UK |
| 16:30 – 17:00 | Q
& A | | |
|
| Allied Health
Professional Workshop | | 09:30 – 10:30 | CF Nursing
Su Madge, CF Nurse, ECFS and ING/CF |
| 10:30 – 12:00 | Nutrition “Nutrition and Enzymes: That’s Where It Starts!”
Alison Morton, Dietician at Leeds Regional Adult CF Unit, UK, member of ECFNG and UK
Dieticians | | 14:30 – 17:00 | Physiotherapy; Inhalation therapy, airway clearance and physical exercise
Louise Lannefors, Physiotherapist, Lund University Hospital, Sweden, IPG-CF |
| | | | CFW Lay Seminar |
| 08:30 – 10:00 |
Registration |
| 10:00 –10:15 | Welcome and Introduction to Cystic Fibrosis Worldwide
Christine Noke, Executive Director CFW |
| 10:15 – 11:00 | Cystic Fibrosis Disease and Treatment
DR
Fustic, Macedonia CF Centre Director |
| 11:00 – 11:30 | Coffee Break | | 11:30 – 12:30 | Physiotherapy
Louise Lannefors,
Physiotherapist, IPG-CF | | 12:30 – 13:30 | Lunch | | 13:30 – 14:00 | Nutrition “Nutrition and Enzymes: That’s Where It Starts!”
Alison Morton, Dietician at Leeds Regional Adult CF Unit, UK, member of ECFNG and UK Dieticians |
| 14:00 – 15:00 |
Living with CF
“Adult with CF” What
can we achieve?
CF Adult and student,
Macedonia
“Being a CF Parent” Where are the answers?
Mother of PT, Macedonia
“Fighting back” Volunteer and make a difference!
Marc Basteinsen, CFW Supporter and CF Adult |
| 15:00 – 15:30 | Q
& A | | 15:30 – 16:00 | Break | | 16:00 – 16:30 | Standards of
Care, European Consensus Review
Developing CF Centre’s, what will work for your
country?
Su Madge, CF Nurse, ECFS and ING/CF |
| 16:30 – 17:00 | Q & A |
| 17:00 | Closing Remarks
Christine Noke, MBA, Executive Director, CF Worldwide |
| |
| | 18-Apr-09 | Day II |
| Medical Seminar | | 09.30 – 10.00 | Nutrition from Infancy to
Adulthood
Dr. Anne Munck, Gastroenterologist, ECFS Board of
Directors | | 10.30 - 11.00 | New
Therapies
Dr. Steven Conway, Leeds Regional Adult CF Unit,
UK | | 11.00 - 11.30 | Coffee Break
| | 11.30 – 12.00 |
Cystic Fibrosis Related Diabetes
Dr. Harry Heijerman, Pulmonologist, CFW Medical Advisor |
| 12.00 – 12.30 |
Physiotherapy; Maintain airways aerated and the body fit
Louise Lannefors,
Physiotherapist, Lund University Hospital, Sweden, IPG-CF |
| 12:30 – 14.00 | Lunch | | 14.00 – 14.30 | Liver disease, DIOS and
other GI manifestations
Dr. Anne Munck, Gastroenterologist,
ECFS Board of Directors | | 14.30 – 15.00 | ABPA, Haemoptysis,
Pneumothorax, and other Pulmonary complications
Dr. Ian
Balfour-Lynn, Royal Brompton Hospital, London UK |
| 15.00 – 15.30 | Coffee Break |
| 15.30 – 16.00 | Home IV
treatment
Dr. Harry Heijerman, Pulmonologist, CFW Medical
Advisor | | 16.00 –
16.30 | Centre care
Sue Madge, CF Nurse, ING/CF |
| 16.30 – 17.00 | Q & A
| | | |
| Allied Health Professional Workshop |
| 10:30 – 11:30 | CF
Nursing
Su Madge, CF Nurse, ING/CF |
| 11:30 – 12:30 | Nutritional Challenges
Alison Morton, Dietician
at Leeds Regional Adult CF Unit, UK, member of ECFNG and UK Dieticians |
| 13:30 – 15:00 | Physiotherapy; aspects in different ages and adherence
Louise Lannefors,
Physiotherapist, Lund University Hospital, Sweden, IPG-CF |
| | |
| CFW Lay Seminar |
| 9:30 – 10:00 |
Cystic Fibrosis, Gene to Disease
Prof. Efremov |
| 10:00 – 10:30 |
Capacity Building,
Organizational Development
• Developing By-Laws
• Developing a Board of Directors
Sharon M. Lund, M.S., Ph.D, University of Minnesota, Research Coordinator |
| 10:30 – 11:00 |
Developing an Organizational Strategic Plan
• Determine Needs
• Develop programs
• Set Goals and Timelines
Christine Noke, MBA, Executive Director, CF Worldwide |
| 11:00 - 11:30
| Break |
| 11:30 – 12:00 |
Developing an Organizational Strategic Plan
• Determine Needs
• Develop programs
• Set Goals and Timelines
Christine Noke, MBA, Executive Director, CF Worldwide |
| 12:00 –12:30 | Latest Treatment and Research |
| 12:30 –14:00 |
Lunch |
| Capacity Building, Raising funds to support the mission! |
| 14:00 – 14:30 |
Developing a Fundraising Plan
Marc Basteinsen, CFW Supporter and CF Adult |
| 14:30 – 15:00 | Events, From Start to Finish!
Christine Noke, MBA, Executive Director CFW |
| 15:00 – 15:30 | Break | | 15:30 – 16:00 | Grant Writing, The Basics
to Success! | | 16:00 – 16:30 | Proposal to Budget, What
you need to know
Sharon M. Lund, M.S., Ph.D, University of Minnesota, Research Coordinator |
| 16:30 –
17:00 | Lobbying Governments, Resources and
Methods
Snezana Bojincin, CF Macedonia |
| 17:15 – 17:45 | Q & A
Ask the CFW Educational Team
Dr. Harry Heijerman, Pulmonologist, CFW Medical Advisor
Christine Noke ,MBA Executive Director CFW
Alison Morton,
Dietician at Leeds Regional Adult CF Unit, UK, member of ECFNG and UK Dieticians
Louise Lannefors, Physiotherapist, IPG-CF
Sue Madge, CF
Nurse, ING/CF
Marc Basteinsen, CFW fundraiser and CF Adult
Dr. Anne Munck, Gastroenterologist, ECFS Board of Directors
Dr.Steven Conway, Leeds Regional Adult CF Unit,
Sharon M. Lund, M.S., Ph.D, University of Minnesota, Research Coordinator
Dr. Ian Balfour-Lynn, Royal Brompton Hospital, London |
| 17:30 | Conference Closing
Christine Noke,
Executive Director CFW
Snezana Bojincin, CF Macedonia
Dr. Fustic, Director of Macedonia CF Centre |
|
|
|
|
|
|
| |
| |
|
|
