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Cystic Fibrosis Worldwide Seminar (June 13)
Cystic Fibrosis Worldwide Annual Meeting (June 12)
Belek, Turkey
June 12 & 13 2007
At the 30th European Cystic Fibrosis Conference
Working in partnership with Cystic Fibrosis Europe
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| Seminar day welcome |
Dear Friends
It is my pleasure to invite you to attend the Cystic Fibrosis Worldwide (CFW) Annual Meeting and Seminar in Belek, Turkey on 12 & 13 June 2007. Each year CFW holds its annual meeting to report back to its members on the work it has progressed, to receive feedback and input from the members and to outline plans for the future. In addition we hold a seminar day to update the lay CF community on the current state of CF research and to look to the future, to discuss issues of living with CF and to educate members in the various parts of building an organisation and gaining support to improve CF care.
In 2007 we are privileged to have Robert J. Beall, the President and CEO of the CF Foundation and Preston Campbell, to provide the update on CF care and research. I look forward to welcoming you in Turkey as we all strive to help improve the lives of all who face the daily challenge of living with CF.
Regards
Mitch Messer
PRESIDENT
Cystic Fibrosis Worldwide
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| Registration |
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Online registration is now closed.
Any questions should be addressed to: 2007conference@cfww.org
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| General Information |
Cystic Fibrosis Worldwide looks forward to welcoming all our members at the CFW Annual Business meeting on June 12th 2007. The ABM will be held at the Papillon Ayscha Hotel.
 Wednesday June 13th, we will host the CFW/CFE Lay Conference. The Lay Conference will also take place at the Papillon Ayscha Hotel.
Registration
If you are a parent or patient, you may attend the Lay Conference without paying the conference fee of 95 Euro. You must sign up here. You will be emailed a confirmation once your registration is complete. Participants who do not sign up through the ECFS website and pay the 95 Euro fee will not have access to the European Cystic Fibrosis Conference welcoming reception or conference venue.
Meeting Rooms (Papillon Ayscha Hotel)
· GORDION IV: June 10th – 15th CFW Executive Board meetings (Including CEO, Allied health groups and ECFS)
· GORDION VII: June 12th 8:00 AM to 7:00 PM CFW Annual Business Meeting
· GORDION VII : June 13th 8:00 AM to 6:00 PM CFW/CFE Lay Conference
The Presidents dinner will be held at the beautiful Club Arma in Antalya. www.clubarma.com.tr
There will be transportation provided to and from the restaurant leaving the Ayscha Hotel at 6:30 PM June 12th. All members who attend the CFW Annual Business Meeting will be given one free ticket. Additional tickets will be 60 Euro per person.
For further information or questions, please contact Janine at info@cfww.org.
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| Conference Agenda |
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June 13, 2007
| 09:00 |
Registration Desk Opens |
| 09:30 |
Welcome and Opening Remarks (Mitch Messer) |
| 09:40 |
Update: CF Care and Research (Robert Beall, CEO and Preston Campbell, CFF) |
| 10:55 |
Coping with CF (from different perspectives: patient, parent, siblings) |
| 11:45 |
Airway clearance techniques (physiotherapy) |
| 12:45 |
Lunch |
| 14:00 |
Workshop 1: Capacity Building for National Organizations- Fundraising
A: Presentation from the UK Trust – Alan Larsen
B: Presentation from the Polish Association – Alicja Rostocka
C: Presentation from the Belgium Association – Karleen De Rijcke
After presentations there will be open floor discussions among participants and opinion leaders. |
| 15:40 |
Break |
| 16:00 |
Workshop 2: CF Registries, how important can they be?
Birgit Dembski and Ulrike Pypops |
| 16:30 |
CF Europe (Karleen De Rijcke, President, CFE) |
| 17:30 |
End of Seminar |
| 18:30 |
Opening Ceremony and Welcome Reception of the 30th ECFS Annual Conference |
Download the agenda.
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Special thanks
Dr. Serdar Oktay
Asst. General Manager of the Papillon Ayscha Hotel
for supporting the Lay Seminar, making it possible for patients and parents to attend for free.
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