2nd Annual Middle East Regional CF Conference

Middle East Regional Conference Agenda

25 Nov 10	Medical Seminar	Time	AHP/Nursing Seminar	Time	Lay Seminar
08.00 – 9.00	Registration
9.00 – 9.30	Press reception for speakers and special guests		Coffee break with meet and greet session to include all medical attendees and allied health		Coffee Break with meet and greet session
9.30 – 10.00	Welcome address Queen of Jordan (tbd) Dr Harry Heijerman – Board member CFW Minister of Health		Welcome address Queen of Jordan (tbd) Dr Harry Heijerman – Board member CFW Minister of Health		Welcome address Queen of Jordan (tbd) Dr Harry Heijerman – Board member CFW Minister of Health
10.00 – 10.30	CF in the Middle East Dr Rida – Director of Palestine CF Centre, Hebron Dr Ewe Fass – Oman Medical College, Muscat		Nutrition & enzymes: that’s where it starts Sue Wolfe - Chief Paediatric Dietitian, Leeds, UK and ECFNG		Welcome and introduction to CFW Christine Noke – Executive Director CFW Michel Absi – President CFLB LAY SEMINAR Workshop Physiotherapy; Why do patients need therapy daily? What is the best to do at home? How to take care of your equipment at home. *Louise Lannefors* -Physiotherapist, Lund, Sweden. IPG – CF Spare Session
10.30– 11.00	CF - from gene to disease *Dr Harry Heijerman* - Pulmonologist, Netherlands. CFW Medical Advisor

11.00 – 11.30	Early lung disease – diagnosis and monitoring *Dr Ian Balfour-Lynn* - Paediatrician, Royal Brompton Hospital, London, UK		Nutritional challenges Sue Wolfe - Chief Paediatric Dietitian, Leeds, UK and ECFNG
11.30 – 12.00	Liver disease *Dr Anne Munck* - Paediatrician, Paris, France. ECFS Board		CF Nursing – hygiene and cross infection Dr Su Madge - Consultant Nurse, Royal Brompton Hospital, London, UK. ECFS Board
12.00 – 12.30	Prevention and treatment of chronic Pa infection *Dr Harry Heijerman* - Pulmonologist, Netherlands. CFW Medical Advisor		Spare Session
12.30 - 13.30	Lunch
13.30 – 14.00	Diagnosis and treatment of PI *Dr Anne Munck* - Paediatrician, Paris, France. ECFS Board		Modern physiotherapy *Louise Lannefors* -Physiotherapist, Lund, Sweden. IPG - CF		Programs for improved CF care in Lebanon *Christine Noke* – CFW Director Fadi, CF Lebanon
14.00 – 14.30	European Standards of Care *Dr Su Madge* - Consultant Nurse, Royal Brompton Hospital, London, UK. ECFS Board		Airway clearance techniques *Louise Lannefors* -Physiotherapist, Lund, Sweden. IPG - CF		Latest Developments and Research *Dr Harry Heijerman*
14.30 – 15.00	Treatment of acute pulmonary exacerbations *Dr Ian Balfour-Lynn* - Paediatrician, Royal Brompton Hospital, London, UK		Q&A with Louise Lannefors -Physiotherapist, Lund, Sweden. IPG - CF		Nutrition and CF – Enzymes, that’s where it starts *Sue Wolfe* - Chief Paediatric Dietitian, Leeds, UK and ECFNG
15.00 – 15.30	Coffee Break		Coffee Break		Coffee Break
15.30 – 16.00	New therapies *Dr Ian Balfour-Lynn* - Paediatrician, Royal Brompton Hospital, London, UK		Physical exercise *Louise Lannefors* -Physiotherapist, Lund, Sweden. IPG - CF		Spare Session
16.00 - 16.30	DIOS and other GI manifestations *Dr Anne Munck* - Paediatrician, Paris, France. ECFS Board		Spare session		Living with CF – Panel of experts Being a CF parent – TBD (Lebanon Mother) Fighting back – Marc Basteinsen
16.30 – 17.00	CF related diabetes *Dr Harry Heijerman* - Pulmonologist, Netherlands. CFW Medical Advisor	15.00 – 15.30	Practical management of indwelling ports and gastrostomies *Dr Su Madge* - Consultant Nurse, Royal Brompton Hospital, London, UK. ECFS Board		More than one CF Patient at home? Techniques *Sue Wolfe*, Nutritionist Louse Lannefors, Physiotherapist Care at home Dr. Harry Heijerman
17.00 – 17.30	Physiotherapy – maintaining the airways and keeping the body fit *Louise Lannefors* -Physiotherapist, Lund, Sweden. IPG - CF	15.30 – 16.30	Spare Session		Home needs with focus on more than one patient Dr Su Madge - Consultant Nurse, Royal Brompton Hospital, London, UK. ECFS Board
17.30	Ask the experts - Panel of all speakers with Dr Mrouh – Lebanon CF DR and member of APPA (This session is open to patients, families and interested medical/allied health.

26 Nov 10	Medical Seminar
09.00 – 10.00	Nutrition from infancy to adulthood Sue Wolfe - Chief Paediatric Dietitian, Leeds, UK and ECFNG
10.00 – 10.30	ABPA, wheeze, haemoptysis, and pneumothorax Dr Ian Balfour-Lynn - Paediatrician, Royal Brompton Hospital, London, UK
10.30 – 11.00	Coffee break
11.00 – 11.30	Other CF complications Dr Harry Heijerman - Pulmonologist, Netherlands. CFW Medical Advisor
11.30 – 12.00	Centre care Dr Su Madge - Consultant Nurse, Royal Brompton Hospital, London, UK. ECFS Board
12.30	LUNCH for speakers and special guests /with sponsors


	Download: Middle East Regional Conference Agenda

Conferences

• December 5, 2011: CF Worldwide Middle East Conference
• June 6, 2011: Annual Meeting of CFW Members
• July 30, 2010: 23rd National Cystic Fibrosis Family Education Conference
• June 16, 2010: 33rd European Cystic Fibrosis Conference
• May 14, 2010: 5th European Conference on Rare Diseases (ECRD)

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