CYSTIC FIBROSIS LAY CONFERENCE ORGANIZED BY THE SPANISH CF FEDERATION
Valencia, June 18 and 19, 2010
Expo Hotel Auditorium (Expo Hotel Valencia)
Avda. PĂo XII, 4 • 46009 Valencia [MAP]
Lay Conference REGISTRATION:
REGISTRATION
• Send registration card before 28/05 to Aisha Ramos [fqfederacion@hotmail.com]
• Registration includes: documents, simultaneous interpreting, coffee service, Saturday’s lunch, and closing dinner.
• Persons with CF need to present a medical report stating that they have been free of Methicillin-resistant Staphylococcus/Pseudomonas, and Burkhordelia cepacia for the past 15 days
Registration deadline: Friday 28th of May.
Payment: directly in the congress at the registration desk
People with CF:
Registration is free, but they still need to send the registration form and the medical report dated after May 30th.
For additional information:
TECHNICAL SECRETARY
FEDERACIĂ“N ESPAĂ‘OLA DE FIBROSIS QUĂŚSTICA
C/ DUQUE DE GAETA, 56, Pta. 14
46022 VALENCIA
TEL. +34 96 3318200
FAX. +34 96 3318208
MAIL: fqpsicologia@fibrosis.org ; fqfederacion@fibrosis.org
WEB: www.fibrosisquistica.org
| Friday June 18th |
14.00 – 16.30 |
Adult forum |
15.00 - 16.00 |
Registration and documentation |
16.00 – 16.30 |
Opening session
| Rafael CarriĂłn-Darijo |
President of the Valencian Community Association |
| Tomás Castillo-Arenal |
President of the Spanish Federation |
| Carlos Vázquez-Cordero |
President of the Spanish Society (SEFQ) |
| Stuart Elborn |
President of the European Society (ECFS) |
| Amparo Solé-Jover |
President of the 33rd European Conference |
| Karleen De Rijcke |
President of the European Association (CFE) |
| Mitch Messer |
President of the International Association |
|
16.30 – 17.15 |
Opening conference
Presented by Dr. Amparo Solé-Jover
“Conclusions of the 33rd CF European Conference”. Stuart Elborn. |
17.15 - 18.00 |
Conference 1
Presented by Tomás Castillo-Arenal
"Recommended quality standards for Spanish cystic fibrosis units". Dr. Carlos Vázquez-Cordero |
18.00 – 18.30 |
Coffee break |
18.30 – 20.30 |
Workshop 1
Presented by Antonio T. RĂos-Tomás. Â
"Physical therapy in Cystic Fibrosis". Dr. Jean Chevalier
Discussion |
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| Saturday June 19 |
| 9.00 – 11.00 |
Table 1. “Sexuality and fertility” |
| Â |
Moderator: Alejandro Dueñas-Celorio
Presentation of the manual “Lets talk about sex”. Dr. Carmen López-Sosa.
"Male and female fertility." Dr. Guillermo Antiñolo-Gil
Experiences presentation
Discussion |
| 11.10-11.30 |
Coffee Break |
| 11.30 – 13.30 |
Table 2. “Participation and social rights” |
| Â |
Moderators: Patxi Irigoyen-de Prado and Juan J. Zamudio-Ranedo
"The World of Associations ". Â Marta Cano.
“Participating in community; study and work". Experiences: Eloi Pons-Marzal, Xavier Caballero-González and Inmaculada Salas-Trejo
Discussion |
| 13.30 – 14.00 |
"Access to the rights of persons with disabilities."
International Convention on the rights of persons with disabilities”
EncarnaciĂłn Blanco-Egido. Consultant. General Direction for the Coordination of Sectorial Policies on Disability (Ministerio de Sanidad y PolĂtica Social)
Discussion |
| 14.00 – 15.30 |
Lunch |
| 15.30 – 16.30 |
Workshops: First part |
| Â |
"Newly diagnosed and daily life in CF."Â
Francisca Cuadrado. Psychologist
"Relaxation and Emotions management"Â
Eva del Baño. Social worker.
Eulalia DĂaz. Psychologist.
"Improving our habits" (physical exercise, nutrition, alcohol, drugs).
MarĂa Garriga-GarcĂa. Nutricionist
Miguel Mayans. Physical trainer |
| 16.30 – 17.30 |
Workshops: Second part |
| Â |
“Adherence to treatment”
Beatriz Monfort. Psychologist
Mónica Hervás. Social Worker
“Growing up with CF”
Isabel Badillo. Psychologist
“Life before and alter transplantation”Â
Susana LĂłpez. Psychologist
Laura Esteban. Social Worker |
| 17.30 – 18.00 |
Coffee Break |
| 18.00 - 18.45 |
Table 3 “Research in CF” |
| Â |
Presented by Esther Sabando
“Pablo Motos” Research Grants. Dr. Amparo Escribano-Montaner
Communication about DHA. Dr. HĂ©ctor Escobar-Castro |
| 18:45- 19.30 |
Conference 2 |
| Â |
"Why should hypertonic saline solution be used in Cystic Fibrosis?" Dr. Adelaida Lamas |
| 19.30- 20.00 |
Table 3 “Research in CF” |
| Â |
"Drawing conclussions." Tomás Castillo-Arenal |
| 20.00 – 20.15 |
Closing ceremony |
| Â |
Tomás Castillo-Arenal. President of the Cystic Fibrosis Spanish Federation
Pilar Ripoll. General Quality and Patient Services Director. |
22.00 |
Closing dinner |
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