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June 3, 2007 Lopen Voor Lucht (Walking for Air): From Nispen to Rome
Marc Bastiaensen began a 2200 kilometer walking tour from his birthplace of Nispen, a small village in the south of The Netherlands, to Rome. His journey is taking him through Belgium, Luxemburg, Germany, and Switzerland before arriving in Italy. He aims to raise 100,000 Euro for Cystic Fibrosis Worldwide and estimates that the walk will take four months.

Many people have accomplished this walk - but this one is different. Marc has cystic fibrosis.
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Marc's Diary

The job is done

I've reached RomeI've reached Rome. After 4 months of walking thru beautiful Europe. The last week was relaxed walking. I had won some days on my original schedule and as my family and some friends had planned to come to Rome to welcome me, it was no option to arrive earlier in Rome. So I took a few extra resting days on the Lakes of Bolsena and Brocciano. The weather was beautiful.

Despite it was already the end of September, temperatures in the middle of Italy still reached 30 degrees Celsius. The last two stages of my walk brought me to the square of St. Peter in Vatican City. About 30km walking beside a busy street with a lot of traffic. Not exactly the track I was used to walk the last weeks and not very good for someone like me with a lung disease. But the finish was in sight so I didn't bother too much about it.

The day before arriving in Rome, my brother and his wife joined me at the lake Bracciano. The last time I had seen them was in Luxembourg about 3 months ago. And then it was the 4th of October, the final day. A team of a Dutch television station was waiting for me in Rome to do an interview and filmed me during the last 5 kilometers, which went thru the city of Rome thru a street called the Via Trionfale (The street of Victory). And then at one o'clock p.m. I reached the square of St. Peter. My family, some friends and even two colleagues from my work with their partners were waiting to welcome me.

I raised my arms in the air as a sign of victoryI raised my arms in the air as a sign of victory. I had made it. My dream had come true. I was happy to see my mom and dad and close them in my arms.
From now on I could relax. There was no need to walk anymore. Just relax and enjoy the city of Rome the next days, that was what was going thru my mind.
Unfortunately a few days later I couldn't walk anymore, even if I would. My right ankle was swollen and burning red. It kept me one day in bed. I was lucky that it happened now and not earlier during my walk. After one day in bed I decided that I had not walked 4 months to Rome to lie in a bed so I put on my shoes, ignored the pain in my right foot and did some sightseeing in Rome together with one of my best friends.

On October the 9th it was time to go back home. No, not by feet, but by plain. What took me 4 months, the plain did in about 2 hours! Back in Holland my boss was waiting for me on the airport to bring me home. In Nispen, the street I live in, was decorated with flags and a lot of people were waiting for me at the house of my parents. They even had organised a big welcome in the evening where everybody was welcome. Now I began to realise what I had done.

When I am writing this it's almost two months later since I finished my walk and still people are talking about it. A week ago I was decorated with a medal from The Duth Royal family by the major of my hometown. It was a big reward for what I had reached in my live until now and I'm feeling very proud. In a few days I will travel to Delhi to see what for beautiful job CFW is doing in India. I hope I will see a lot of children with CF with a big smile on their face, that would be an even bigger reward for me then such medal!


 
     

September 26

Just about a week to go and I have reached Rome. I'm now at the Lake of Bolsena, just 120 kilometres away from Rome and enjoying one of my last resting days. Since August 11th a lot has happened. After crossing the Gotthardpas in Switzerland it was a lot of climbing over small rocky walking paths. I had to climb between 800 and 1200 metres a day and of course go down the same metres. But the landscape was spectacular and the weather very good.

After one week I reached the Lake of Lugano, my last stop before entering Italy.

The first days in Italy were disastrous. Heavy rains, the lack of good walking paths and the fact that many hotels were closed due to the holiday season (many hotels in the North of Italy are managed by families and as the North of Italy is more based on winter sport then on summer holidays, many hotels close in summer), made that I had a very difficult time. I also find out that one resting day in Lugano was to little to let my body recover from the heavy walks in Switzerland. Totally exhausted I decided to take the train to Pavia near Milan to take three resting days before continuing my walk. It was a good decision and from then on everything was going well again. In the Appenins I stayed at the Casa de'Prian, a small Bed and Breakfast house. The people here were very friendly, made a good diner for me and helped me finding a hotel in the next village where I want to go to the next day. When I left the next morning, they even made a small donation for my goal.

The spectaculair coast of Cinque Terre on the Mediterenian seabeerI walked to Genoa on the coast of the Mediterranean See. If I had thought that after the mountains in Switzerland the rest of my walk would be easier, I was wrong. During the next two weeks I had to walk near the coast over small walking paths going up and down, climbing everyday about 800 metres. It was after all heavier than walking in Switzerland. But here again, the spectacular views made it all worth. It was here that a friendly Italian woman offered me some Focaccia (a sort of salty bread) and a big bottle of beer.

After the Italian coast I entered Tuscany, one of the most beautiful places in Europe, I think. Here I could pick up the Via Francigena, an old Pilgrim route from the Middle ages. This route leads straight to Rome and is well signed, via beautiful places like Lucca, San Gimignano and Siena. It was in the beginning in Tuscany that I got some problems with my stomach which undermined my appetite. It last for three days and ended with a small fever. At that time I was in Monteriggioni, a very small old village, where I find a place to sleep in the priest's house, who rented rooms especially for pilgrims. He admired me for what I was doing and although I wasn't a real pilgrim - in the meaning of the word - he let me stay in his house for free. When I entered the church next morning just to wave him goodbye, he began to tell the people in the church about my walk and asked me to come forward to tell my story. The he wished me all the good luck for the rest of my walk and gave me a medallion to protect me. He kissed me on my cheeks and together with the rest of the church waved me goodbye. It was heart-warming!

Me standing on the Piazza Il Campo in SienaAnd now, a few weeks later I have reach Bolsena. With just one week to go, it's a strange feeling that my walk is coming to an end. I will be glad that it will end, because I'm looking forward to be back home and live my daily live. And as I'm looking back now I only can say that it was a tremendous experience. I've learned a lot, about my self, about other people and about live. I'm also excited that so many people have donated money for the project in India. Ok the 100.000 euro I wanted to collect was maybe a little to optimistic, but more the more than 20.000 euro I collect with my friends of Lopen voor Lucht is an amount that hopefully can bring a smile upon the faces of many children and their parents.
 
     


August 11

Now we are in the Alps. The landscape is rough and spectacular. Rather cold in the morning at 2000 meters. I have company from my cousing Jolanda and see cheers me up after another day of rain. Lots of rain again the last few days. Today the rain is less but the mountains are still very cloudy and the planned trip to 3200 meter high Gemmstock is cancelled. A well, more good to see tomorow, when we pass the Gotthardpas. Weather predictions are good so I am looking forward to it.
 
     

August 7

Leaving the Swarz Wald, the landscape changes. Opener, more hills. 6 days to go to the Bodensee and a resting day in Konstanz. The weather is still very nice so an enjoyable route.

In Konstanz I say goodbeye to mom, dad, uncle and aunt. The first day in Switserland are a bit boring. Not too exiting landscape and I have to get used to the signposting. No km’s anymore but timetables and multiple choice in ways to go.

Walking in Switzerland is more heavy on the knees, most walking ways are roads no more natural paths. But I will get used to it and it will get better.
 
     

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July 31

At a restday in Titisee, I met a husband and wife from Strassbourg. The joined me at a table in a restaurant as it was busy and other seats taken. We started conversation and I told them all about my trip to Rome. The man insisted on paying my lunch, I thanked them, and followed my way. Not one hour later, he was there again, giving me 50 euro. I was perplexed, did not know how to react. Thanked him again and told him it would be donated to the foundation.

His eyes filled with tears, he turned and started walking away. Than turned again and gave me his shawl. It was a silk pelgrimage scarf. I tried to refuse it, but again, he insited, tellingme it would bring me luck and help me to get to Rome.

Those are the experiences which make me go on.
 
     

July 24

I expected the company of my uncle in Titisee. He brought along my aunt and my mom and dad as well. That was a good kept surprise! I could not stop smiling. It is so great to see them both again! Walking is fine now. The Swarz Wald is walking paradise, I have a good ritme and enjoy every day of it. My backpack is not the only thing losing weight. I think I left a few kilo’s along the way myself as well. I eat a lot and very well thoug. Guess I burning even more calories than I can feed myself. Well, as long as I keep feeling well I wont worry too much.
 
     

July 18

As I thought, the first days in the Schwarz Wald were going up and down at a temperature of 30ºC Fortunately I had the company of two friends who came to visit me, and walked along for a few days. One day, we had to climb 900 meter, which was really heavy. But, it was a good test as Switzerland will bring more hills! After a good thought, I gave my tent to Petra and Roy to take home. Some more things I did not use before went along too and got walking sticks. My back was killing me and with the backpack better organised and lighter and with the walking sticks, I can concure those Swiss hills easaly.
 
     

July 14

Followed the Rijn downwarts and preparing myself to go into the Schwarz Wald. The past days were “flat” but I can see the hills of the Schwarz Wald from here. Only 10 km away from climbing in hot weather. The life of a walker is not always easy. :0)
 
     


July 9

Today I walked through the Pfalzerwald, a beautifull nature area just above Karlsruhe. Lots of woods with rocks. And good that I am on my feet again, as a beginning pain in the leg kept me “home” for a few days. It forced me to skip to routs. But, pain is gone and I am going again. Germans are very nice people. On the way I get asked about my plans a lot and quite some people offer coffee, or money for lunch.
 
     

June 27

Luxembourg I will remember in one way… WET. A lot of rain.

A collegue and his wife are on holiday here in Vianden and they support me the whole week. The provided my sleeping place and food and walk along the muddy routes through the hills.

Walking for AirIn Vianden I met representatives from the Luxembourg CF Organisation. They organised publicity in the newspaper and on tv.

My brother and sister in law surprised me with a visit! My brother walk along and we had a lot to talk about!

Than a short story about my daily routine this time:

No alarmclock. I wake up around 7 by myself, breakfast around 8.30

9.15 / 9.30 I will be on my way. First stop, backery or Supermarket for my daily diet.

I will have lunch whenever I am hungry and where ever I will be. Hiding from the rain underneath a shelter, on the steps of a church, or laying down in the sun in the grass.

Usually I arrive between 15.00 and 1600 at the next location. A bit to eat first to catch up with lost energy. Than arranging a place to sleep, have a shower and take a nap. I realise I need the nap. The walking takes a lot of energy and I do need to fill up the battery before I can go on again. I also noticed that the resting days are nessecary to re-gain strength and energy.

After that, around 19.00/19.30 I go look for diner.

Around 22.00 I will be in bed, write in my diary and go to sleep.

Medication is no problem, all is well. I had a bit of a struggle with the correct dose of insuline at the beginning and I had a few hypers. But all is under control now. I use a lot less insuline, because of the walking and different way of eating.

My thoughts are often with the things I experienced and did in my life so far. All the set goals I achieved. I am so happy with the desicion I made at younger age. To go for the quality of life rather than the quantity. What ever happens, there are always positive things to think about. I promissed myself to enjoy life even more. It is too short to let it go by without enjoying it!

 
     
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June 19

The walking is going better every day and I just love the landscape. Some occasional rain, but further nice and sunny weather. Climbing with the backpack is a bit hard, but I will get used to that as well.
 
     

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June 16

I got recognised! In Maastricht, some people of Roosendaal recognised me from the newspaper. All this publicity made me “famous”. Ha ha! I left the Netherlands yesterday and am on my way to the Belgium Ardens. Slowly the landscape changes into hills.
 
     

June 12

Went very well today, combined to routes on one day and arived in Maastricht one day early. I installed myself in the Stay Okay and will take an extra rest day here. Mom and dad will visit me for a day.
 
     

June 8

Miscalculation in the route to the monister of Averbode. No 18 but 32 kilometers. With a blister on the left toe it is a bit harsch. The monister was a very nice experience and a perfect place to get to absolute piece and rest.

Good news from home. The CF organisation from Luxembourg is mobilising the press to meet me in Vianden. The will welcome me with a diner, hopefully not too formel, my toxido did not fit in the backpack.

And, last but not least, LUXGSM, the biggest GSM provider of Luxembourg offered a donation for Lopen voor Lucht of 1000 euro!! I have forgotten about the blister :0)
 
     
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June 4

It was an exiting day yesterday, and a bit tyring. Slept well in a trackinghut in Brecht and left for Zoersel this morning. In the youth hostel I was the only guest. The owners heard my story and invited me for diner. It this splended start is a sign for the rest of the journey...
 
     

About the Event

Walking for Air
Walking for Air

THE NETHERLANDS - On June 3, 2007, Marc Bastiaensen will start a 2200 kilometer walking tour from his birthplace of Nispen, a small village in the south of The Netherlands, to Rome. His journey will take him through Belgium, Luxemburg, Germany, and Switzerland before arriving in Italy. He aims to raise 100,000 for Cystic Fibrosis Worldwide (CFW) and estimates that the walk will take four months. Many people have accomplished this walk - but this one is different. Marc has cystic fibrosis (CF).

CF is the most common genetic disease among the Caucasian population. It primarily affects the respiratory and digestive systems, causing the pancreas and lungs to secrete thick mucus. The body’s ability to move salt and water throughout the cells is also compromised. Marc is a CF patient in good health. He hopes that by completing this walk other patients will realize that they do not have to completely rely on medical care for their quality of life. “I want to be a positive example and I hope that my walk can stimulate these patients to try a little bit harder and to show that you can reach a higher quality level of life my yourself,” he says.

Marc Bastiaensen
Marc Bastiaensen

Marc was diagnosed with CF at age five. Years earlier, his young brother had mysteriously died - and now Marc knew why. His parents were told that he would not live long - now he is forty-two years old. He credits his optimism and fighting spirit for this survival. He stays in shape through playing squash, mountain biking, running and long distance walking. More than twenty years later, he feels stronger than ever. In 2004, Marc suffered from bleeding in one of his lungs. Coupled with the CF-related death of a girlfriend two years earlier, he realized that he had reached almost all the goals he set for himself. Like any good athlete, Marc chose to set more goals which included sharing his energy and optimism with other CF-patients.

Living in a welfare state like The Netherlands means he received the best medical treatment a CF-patient can get. Marc realized that not all CF patients are so lucky. Thus began his quest to help CF patients in developing countries. He decided to embark on a long-distance walking tour to show other CF patients that it is possible to have a good life if you put enough energy into it; and to raise money for CF patients in developing countries.

Cystic Fibrosis WorldwideMarc and his brother Patrick teamed up to start the organization “Walking for Air” to help promote his tour. The brothers heard about CFW’s project in India/South Asia and decided that the fruits of their labor would go towards developing the South Asia CF Trust. According to Christine Noke, Executive Director at CFW, “the main objectives for CFW to assist India include spreading awareness of CF in India, supporting activities that provide care for all CF families, and strengthening the development of the South Asian Cystic Fibrosis Trust.”

Although CF is often classified as a Caucasian disease, it is suspected that there could be 1 in 40,000 patients being born with CF in South Asia each year. An Epidemiology study is being planned as part of CFW’s program to determine the true numbers of patients throughout South Asia.

Walking for Air

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