International Physiotherapy Group for Cystic Fibrosis
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INTERNATIONAL PHYSIOTHERAPY PRACTICE IN INFANTS WITH CYSTIC FIBROSIS SURVEY RESULTS 1998 – 2000
Endorsed by the International Physiotherapy Group / Cystic Fibrosis (IPG/CF)
Grant support: European Respiratory Society Taskforce Project
Survey results prepared
by:
Brenda M. BUTTON Dip Phty, PhD
Country contact person: Australia
Department of
Allergy, Immunology and Respiratory Medicine, The Alfred Hospital, Melbourne,
Australia
Beatrice OBERWALDNER PT gepr. APT Dr
Country contact person:
Austria
Klinische Abteilung fĂĽr Pulmonologie und Allergologie, Univ.-Klinik fĂĽr Kinder- und
Jugendheilkunde, Medizinische Universität, Graz, Austria
Statistical analysis & advice
relating to collation of results:
Ian STORY PhD
Faculty of Health and Behavioural
Sciences, Deakin University, Melbourne, Australia
IPG/CF Board Members 1998-2007 who
supported the project:
Jennifer Pryor
Carien Beurskens
Louise
Lannefors
Maggie McIlwaine
Sandra Gursli
Libuse Smolikova
Jovita
Zerlik
Esta Tannenbaum
Filip Van Ginderdeuren
Acknowledgements
The IPG/CF
for supporting the project and distributing the questionnaire to the contact physiotherapists in the
40 IPG/CF member countries in 1998 - 2000.
All the country contact physiotherapists in
IPG/CF member countries in 1998-2000 who distributed, completed and returned questionnaires for
collation and analysis.
Grateful thanks for the editorial comments and suggestions made by
Professor Maximilian Zach from the Klinische Abteilung für Pädiatrische Pulmonologie und
Allergologie, Univ.-Kinderklinik, Medizinische Universität, Graz, Austria, and
Professor Andrew
Bush from the Royal Brompton Hospital during the preparation of the survey results.
Melissa
George, Kate McQueen and Annie Dummett are acknowledged for assistance with data entry from the
completed surveys.
Survey summary:
Background: Physiotherapy has traditionally commenced
at diagnosis in infants with cystic fibrosis (CF). The aim of the survey was to determine
physiotherapy practice in IPG/CF member countries.
Method: A structured questionnaire was
developed by a group of experienced international physiotherapists, members of the IPG/CF. The
questionnaire was piloted, revised and mailed internationally. Questions were asked about the
demographics of participating CF centres, the physiotherapy organization, experience and practice,
the use of newborn screening, the timing of the introduction of physiotherapy, education of carers
and infection control practice.
Results: A total of 166 completed questionnaires were returned
from 27 countries. CF centre size and therapists’ experience ranged widely. Newborn screening
occurred at 43% of centres that completed surveys, physiotherapy was commenced at diagnosis in 77%
of centres with newborn screening and 86% of those without screening. Family members were taught by
the centre physiotherapist and provided daily physiotherapy at 93% of centres. Patient segregation
based on respiratory organisms was widely practiced. Twelve different physiotherapy techniques were
prescribed.
Conclusions: The results of the survey found a wide variation in physiotherapy
practice.
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