International Physiotherapy Group for Cystic Fibrosis
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INTERNATIONAL PHYSIOTHERAPY PRACTICE IN INFANTS WITH CYSTIC FIBROSIS SURVEY RESULTS 1998 – 2000 .
Material and Methods.
Questionnaire
A structured information gathering questionnaire was
developed and reviewed by a panel of internationally recognized physiotherapists treating infants
with CF. It was endorsed by the International Physiotherapy Group for Cystic Fibrosis (IPG/CF). The
questionnaire was piloted at six paediatric CF centres in Australia followed by final amendments
which consisted of re-phrasing questions that were unclear. Worldwide distribution occurred via the
International Physiotherapy Group for Cystic Fibrosis (IPG/CF) who distributed the questionnaire to
the country contact physiotherapist in each of the 40 member countries between 1998 and 2000.
Contact persons in turn distributed the questionnaire to national CF centres for completion. The
complete questionnaire is available upon request from the following email addresses:
b.button@alfred.org.au or brendab@unimelb.edu.au. The questionnaire addressed the following topics:
CF centre demographics, therapists’ experience, newborn screening, training of caregivers, timing of
the introduction of physiotherapy, infection control practice, the different techniques and
adjunctive inhalation therapy prescribed.
Asymptomatic infants were defined as having a
clear chest radiograph, no added sounds on auscultation, a dry sounding cough on stimulation, no
increase in frequency of cough, a normal breathing pattern and respiratory rate (expected in an
infant of a similar age without CF). Symptomatic infants were defined as having one or more of the
following: changes on chest radiograph, added sounds on auscultation, moist sounding cough or cry,
increased frequency of cough, abnormal breathing pattern and increased rate of
breathing.
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