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STRATEGIC PLAN 2007 - 2012. KEY ACTIVITY AREA 4.
KEY ACTIVITY AREA 4 - Act as a key source of international cystic fibrosis
information and resources
Goal 4
Provide a platform for the exchange of information
eliminating language barriers and opening lines of global communication among parents, people with
cystic fibrosis and health care providers in the management of cystic
fibrosis.
Objective1:
Offer a public forum via the Cystic Fibrosis Worldwide website and
newsletter that relays current information and facilitates access to professionals to share
knowledge, experiences and the latest developments
Strategies:
•
Maintain a multi-language website (Forums, Publications, member updates, Press Releases, conference
news)
• Deliver the Cystic Fibrosis Worldwide newsletter 3 times per
year
• Develop a program for an annual seminar to be held in conjunction with
Cystic Fibrosis Worldwide meetings
Objective 2:
Develop member
networks
Strategies:
• Produce a member newsletter
quarterly
• Produce online updates and information via
email
• Offer ways for members to participate or partner in programs
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5 for 5 Campaign
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