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BY-LAWS OF CYSTIC FIBROSIS WORLDWIDE, INC.

ARTICLE I
MEMBERS
Section 1. Classes of Members; Qualifications. The Corporation
shall have Voting Members and Associate Members (hereinafter jointly “Membersâ€). The Corporation’s
Voting Members shall be national cystic fibrosis organizations. The Associate Members shall be
not-for-profit organizations active in the field of cystic fibrosis, and individuals affected by
cystic fibrosis who shall be at least eighteen years of age. Only Voting Members shall have
voting rights.
Section 2. Admission of
Members. Voting Members and Associate Members may be admitted by approval of a majority of the
members of the Board of Directors. No applicant shall be denied membership based upon race, gender,
creed, sexual orientation or national origin. In the event that the Board of Directors decides
not to admit a prospective Member, it will give written notice to the Voting Members within ten days
of such a decision, after which the Voting Members may admit such prospective Member by the approval
of a majority of the Voting Members voting at a regular or special meeting of the Voting Members.
Section 3. Members’
Obligations. The obligations of the Members shall include the following:
(i) to pay membership dues, in accordance with a schedule determined by the Members, except as
otherwise provided herein; (ii) to comply with these By-laws and any regulations and
resolutions adopted by the Board of Directors, the Members or the officers of the Corporation; not
to prejudice the Corporation’s interests; and (iv) to accept and perform any other obligations which
may arise from membership in the
Corporation.
Section 4. Suspension; Termination of
Membership (a) The Board of Directors may suspend a Member for a
period not exceeding twelve months upon written notice to such Member if the Member has
repeatedly failed to perform one or more of such Member’s membership obligations as set forth in
Section 3 above and such Member has continued to fail to perform such obligations after having
received notice from the Board of Directors and having been given 30 days to cure such failure. A
Member shall not be entitled to exercise such Member’s membership rights as long as such Member is
suspended. If the Board of Directors does not adopt a resolution to expel a suspended Member within
the specified time limit, the suspension shall terminate and the Member may continue to exercise
such Member’s membership rights upon the expiration of such time limit.
(b) A Member’s membership shall terminate upon the
occurrence of any of the following events:
(i) if such Member dies, or, if the Member is an organization, if such
organization ceases to exist;
(ii) if such Member gives written notice of termination;
(iii) if the Corporation gives written
notice of termination to such Member; or
(iv) if such Member is
expelled.
(c) A Member may terminate
such Member’s membership by giving written notice to the Secretary of the Corporation. The
Secretary shall confirm in writing receipt of such notice within thirty days of receipt
thereof. If such notice is received by the Secretary on or before the first day of November of
any fiscal year, the termination shall be effective as of January 1 of the next fiscal year of the
Corporation. If notice of termination is not received by the Secretary before the first day of
November, membership shall continue until the end of the next fiscal year of the Corporation, unless
the Board of Directors decides otherwise or unless membership constitutes undue financial hardship
for such Member as determined by the Board of Directors at its sole discretion.
(d) The Board of Directors may terminate a Member’s
membership for any of the reasons set forth below by giving written notice to such Member on or
before December 1 of any fiscal year. Such termination shall be effective as of January 1 of
the next fiscal year. The Corporation may only terminate a Member’s membership upon one or
more of the following grounds: (i) failure by the Member to meet such Member’s financial obligations
to the Corporation after having received written reminders to do so, or (ii) failure by
the Member to meet the membership requirements set forth in Section 1 above. The
Corporation may terminate the membership of a Member, effective immediately, if the Corporation
cannot reasonably be required to allow membership to continue. Notice of termination shall be given
in writing, stating the reason(s) for termination.
(e) The Board of
Directors may expel a member if such Member acts contrary to or in breach of these By-laws or
the regulations, decisions or resolutions of the Corporation; provided, however, that the Member
shall receive ten (10) days’ advance written notice that the Board of Directors intend to expel the
Member and specifying the actions giving rise to the expulsion, and the Member shall not have cured
such actions during such ten day period. Notice of expulsion shall be given by the Board of
Directors, which shall notify such Member of its decision by registered mail, stating the reason(s)
for expulsion. On receipt of such notice, such Member shall have the right to appeal the decision to
the Voting Members at the next Annual or Special Meeting of the Members. During the period for such
an appeal and pending the appeal, such Member shall be suspended from membership. Upon
such an appeal, a decision by the Members to expel a Member shall require at least two-thirds of the
votes validly cast at the meeting of Members.
(f) A Member shall remain responsible for the membership dues and any
increase thereto for the entire fiscal year in which membership termination occurs, unless the Board
of Directors decides otherwise.
Section 5. Annual
Meeting. An annual meeting of the Members shall be held within six months of the end of each
fiscal year (the “Annual Meetingâ€) for the following matters: (i) the minutes of the previous
Annual Meeting shall be discussed and confirmed; (ii) the Board of Directors shall present the
annual report; (iii) the annual report and accounts shall be discussed and adopted; (iv) the
membership dues and contributions shall be determined; (v) the budget shall be approved; (vi) any
vacancies on the Board of Directors shall be filled; (vii) the place where the next Annual Meeting
shall be held shall be determined; and (viii) such other business as may properly come before the
meeting shall be transacted.
Section 6. Special Meetings. In
addition to the Annual Meeting, special meetings of the Members may be called by the Board of
Directors at any time and shall be called by the Board at the request in writing by Voting Members
entitled to not less than 10% of the votes entitled to be cast at such meeting. Such request
shall state the purposes(s) of the proposed meeting. Within 14 days of receipt of such a
request, the Board shall give notice of the special meeting to the Members.
Section 7. Notice of
Meetings.
Written notice of the place, date and time of
all meetings of the Members shall be given, not less than 21 nor more than 60 days before the date
on which the meeting is to be held, to each Member, except as otherwise provided herein or required
by law.
When a meeting is adjourned to another place,
date or time, written notice need not be given of the adjourned meeting if the place, date and time
thereof are announced at the meeting at which the adjournment is taken; provided, however, that if
the date of any adjourned meeting is more than thirty days after the date for which the meeting was
originally noticed, written notice of the place, date and time of the adjourned meeting shall be
given in conformity herewith. At any adjourned meeting, any business may be transacted which might
have been transacted at the original meeting.
Section 8. Attendance;
Quorum
All Members, both Voting and Associate Members,
shall be admitted to a meeting of the Members. At any meeting of the Members, at least fifty
percent (50%) of the Voting Members, present in person or by proxy, shall constitute a quorum for
all purposes, unless or except to the extent that the presence of a larger number may be required by
law.
If a quorum shall fail to
attend any meeting, the chairman of the meeting or a majority of the Voting Members who are present,
in person or by proxy, may adjourn the meeting to another place, date, or time.
If a notice of any adjourned special meeting of Members
is sent to all Members, stating that it will be held with those present constituting a quorum, then
except as otherwise required by law, those present at such adjourned meeting shall constitute a
quorum, and all matters shall be determined by a majority of the votes cast at such
meeting.
Section 9. Organization. The President,
or in his or her absence, such person as the Board of Directors may have designated or, in the
absence of such a person, such person as may be chosen by a majority of the Voting Members who are
present, in person or by proxy, shall call to order any meeting of the Members and act as chairman
of the meeting. In the absence of the Secretary of the Corporation, the secretary of the
meeting shall be such person as the chairman appoints.
Section 10. Conduct of Business. The chairman of any meeting of the Members shall
determine the order of business and the procedure at the meeting, including such regulation of the
manner of voting and the conduct of discussion as seem to him or her in order.
Section 11. Proxies and Voting.
(a) At any meeting of Members, every Voting Member may
vote in person or by proxy authorized by an instrument in writing filed in accordance with the
procedure established for the meeting. Each Voting Member shall have two (2)
votes.
(b) Votes not concerning
persons shall be taken orally, votes concerning persons shall be taken by ballot. Motions may
be passed by acclamation, provided that this is done on the proposal of the chairman of the
meeting.
(c) All resolutions on
motions not concerning persons shall be passed by a majority of the votes cast, except where these
By-laws provide otherwise. If the votes are equally divided, the motion shall be deemed to have been
defeated. In an election of Directors, the candidate who receives a majority of the votes cast
shall be declared elected. If no candidate has received such a majority vote, a second vote
shall be taken between the two candidates who received the largest number of the votes cast, and the
candidate who has received the majority of the votes cast in such second vote shall be declared
elected. If the votes are equally divided in the second vote, lots shall be drawn to decide
the issue. Except as otherwise provided in the Certificate of Incorporation or by these
By-laws, an abstention shall not constitute a vote cast.
(d) The business
transacted at a meeting of Members shall be recorded in minutes kept by the Secretary or by the
person designated for that purpose by the President; the minutes shall be confirmed at the first
subsequent Annual Meeting.
Section 12. Consent of
Members in Lieu of Meeting. Any action required to be taken at any annual or special meeting
of Members of the Corporation, or any action which may be taken at any annual or special meeting of
the Members, may be taken without a meeting, without prior notice and without a vote, if a consent
in writing, setting forth the action so taken, shall be signed by the Members having not less than
the minimum number of votes that would be necessary to authorize or take such action at a meeting at
which all Members entitled to vote thereon were present and voted and shall be delivered to the
Corporation by delivery to its registered office in the State of Delaware, its principal place of
business, or an officer or agent of the corporation having custody of the book in which proceedings
of meetings of Members are recorded. Delivery to the Corporation's registered office shall be by
hand or by certified or registered mail, return receipt requested. Every written consent shall bear
the date of signature of each Member who signs the consent.
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