The Norwegian Cystic Fibrosis Association (Norsk forening for cystisk
fibrose - NFCF) was founded in 1969. Our aim is to
• provide help and support to persons with cystic fibrosis and their families
• provide information and knowledge about cystic fibrosis to both health
professionals and governmental offices
NFCF has a national board and 4 regional suborganisations; North (region
Nord), Mid (region Midt), West(region Vest) and South-East (region Sør-Øst)
with their own boards.
The regional boards are responsible for organizing activities for the
members in their region. The regional boards answer to the national board.
NFCF Activities and Membership
We organize social activities and seminars, both regionally and nationally.
As a member of NFCF, you gain access to these popular activities, and you
will also receive our magazine CF-bladet(in norwegian) which is published 3
times per year.
We also have a support-service called “Likemannâ€, where you will find people
well experienced living with CF. These people are persons who either
themselves have CF, spouses, parents, grandparents or otherwise significant
person to someone with CF.
Our medical advisory board(Fagrådet), consists of doctors (children and
adults), nurses, social workers, all of which are specialized
CF-professionals with extensive experience working with CF.
The Norwegian CF population (pr 2009)
There are approximately 280 patients with CF in Norway. About 60 percent is
above the age of 18, approximately 10 percent is above the age of 40. As
there is no official CF-registry in Norway, we have no exact number of the
total CF-population, nor do we have statistics on median age. The numbers
presented here are based on the known patients registered at the Norwegian
Cystic Fibrosis Resource Centre (Norsk senter for cystisk fibrose, NSCF).
