HISTORY OF CYSTIC FIBROSIS WORLDWIDE

Cystic Fibrosis Worldwide (CFW), formed after the merge of the International Association of Cystic Fibrosis Adults and the International Cystic Fibrosis (Mucoviscidosis) Association, is dedicated to improving quality of life and life expectancy for persons living with cystic fibrosis globally. CFW has 52 member countries with a number of members coming from developing parts of the world. With these new memberships comes an awareness of the desperate situation facing those who have cystic fibrosis, caregivers or medical professionals in developing countries.

Cystic Fibrosis Worldwide reaches out to these countries by working to help develop effective cystic fibrosis treatment and care. This includes helping to organize much needed medications, development, training and education of health care providers, parents and people with CF and spreading awareness of cystic fibrosis at the government and community levels. We seek to find people with CF who are living in countries where cystic fibrosis is thought to not exist and offer them hope for better tomorrows. It is our objective to find a solution that will bring long-term benefits to the existing persons with cystic fibrosis and to those people with CF who will be born in the future, leaving no people with CF behind. Until a cure is found, we will strive to provide humane situations for those who are currently suffering from cystic fibrosis globally.

In order to carry out our mission and vision as a nonprofit organization we need to actively seek charitable contributions and sponsorship of our many activities.

If you or your organization would like to participate in our global efforts you may do so by joining us in our Burke Bear campaign! Contact us and we will help you plan a fundraising event in your area or simply mail a donation here!

As always, donations are important to Cystic Fibrosis Worldwide and we are very grateful to those who want to provide financial support to allow us to carry out additional activities.