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Cystic Fibrosis Conferences and Meetings


  • June 18-19, 2010. Valencia, Spain
  • June 8, 2011. Hamburg, Germany
  •  

    June 8, 2011
    CONTINUOUS IMPROVING QUALITY OF CF-CARE:
    HOW PATIENTS AND CF-CENTRES CAN WORK TOGETHER
    Hamburg, Germany

    ____________

    Welcome and introduction
    Speakers: Dominique Bertrand and Martin Stern
    Download/Play: English
    Duration: 3 min 4 sec


    How state-of-the art therapy can be made available to patients –
    learning from a recent study on treatment-disparities in Europe.

    Speaker: Anil Mehta
    Download/Play: English
    Duration: 17 min 46 sec

    Questions and Answers
    Download/Play: English
    Duration: 14 min 15 sec


    How to capitalize on the cooperation between care-centres and patient groups
    Speaker: Karleen De Rijcke
    Download/Play: English
    Duration: 18 min 57 sec


    Pro and Con session and debate: Transparency: Should CF-care centres "open their books" and publish treatment outcomes?

    Pro Session
    Speaker: Erik Wendel
    Download/Play: English
    Duration: 19 min 21 sec

    Con Session
    Speaker: Paul Wenzlaff
    Download/Play: English
    Duration: 28 min 24 sec

    Pro and Con Debate
    Download/Play: English
    Duration: 26 min 40 sec


    Reaching "difficult" patients: Experiences from a German intervention project.
    Speakers: Jochen Mainz and Corinna Moos-Thiele
    Download/Play: English
    Duration: 22 min 5 sec


    Benchmarking to foster continuous quality improvement: how to start and how to use?
    Speaker: Michael Boyle
    Download/Play: English
    Duration: 25 min 47 sec

    Questions and Answers
    Download/Play: English
    Duration: 7 min 55 sec

     

     

     

    June 18-19, 2010
    Cystic Fibrosis Lay Conference
    Valencia, Spain

    Organized by the Spanish Cystic Fibrosis Federation
    ____________

    Opening conference
    "Conclusions of the 33rd CF European Conference"
    Speaker: Stuart Elborn, President of the European Society (ECFS)
    Download/Play: English - Spanish || Slides: PowerPoint presentation
    Duration: 17 min


    Conference 1
    Presented by Tomás Castillo-Arenal
    "Recommended quality standards for Spanish cystic fibrosis units"
    Speaker: Dr. Carlos Vázquez-Cordero
    Download/Play: English - Spanish
    Duration: 53 min


    Workshop 1
    Presented by Antonio T. Ríos-Tomás.
    "Physical therapy in Cystic Fibrosis"
    Speaker: Dr. Jean Chevalier
    Download/Play: English - Spanish
    Duration: 1 hr 45 min


    Table 1. “Sexuality and fertility”
    Moderator: Alejandro Dueñas-Celorio
    Presentation of the manual “Lets talk about sex”.
    Speaker: Dr. Carmen López-Sosa
    Download/Play: English - Spanish
    Duration: 19 min


    Table 1. “Sexuality and fertility”
    Female and male fertility in Cystic Fibrosis
    Speaker: Dra. Irene Peregrín-Álvarez
    Download/Play: English - Spanish
    Duration: 23 min


    Table 1. “Sexuality and fertility”
    Personal Experiences
    Speaker: Various
    Download/Play: English - Spanish
    Duration: 25 min


    Table 2. “Participation and social rights”
    The World of Associations
    Speaker: Marta Cano
    Download/Play: English - Spanish
    Duration: 57 min


    Table 2. “Participation and social rights”
    Participating in community; study and work.
    Speaker: Inmaculada Salas-Trejo
    Download/Play: English - Spanish
    Duration: 18 min


    Table 2. “Participation and social rights”
    Access to the rights of persons with disabilities
    Speaker: Encarnación Blanco-Egido
    Download/Play: English - Spanish
    Duration: 44 min


    Table 2. “Participation and social rights”
    Parents Discussion
    Speaker: Various
    Download/Play: English - Spanish
    Duration: 20 min


    Workshop 2
    Improving our habits
    Speaker: María Garriga-García (Nutritionist)
    Download/Play: English - Spanish
    Duration: 20 min


    Workshop 2
    Improving our habits
    Speaker: Miguel Mayans (Physical trainer)
    Download/Play: English - Spanish
    Duration: 26 min


    Workshop 2
    Improving our habits - Questions
    Speaker: Various
    Download/Play: English - Spanish
    Duration: 6 min


    Workshop 3
    Life before and after transplantation
    Speakers: Susana López (Psychologist) and Laura Esteban (Social Worker).
    Download/Play: Spanish
    Duration: 57 min


    Table 3: Research in CF
    “Pablo Motos” Research Grants
    Speaker: Dr. Amparo Escribano-Montaner
    Download/Play: English - Spanish
    Duration: 24 min


    Table 3: Research in CF
    Communication about DHA
    Speaker: Dr. Héctor Escobar-Castro
    Download/Play: English - Spanish
    Duration: 25 min


    Conference 2
    Why should hypertonic saline solution be used in Cystic Fibrosis?
    Speaker: Dr. Adelaida Lamas
    Download/Play: English - Spanish
    Duration: 38 min


    Presentación Red Iberoamericana de FQ
    Speaker: Antonio Ríos
    Download/Play: English - Spanish
    Duration: 9 min


    Closing ceremony
    Speakers: Tomás Castillo-Arenal, Karleen De Rijcke, Mitch Messer
    Download/Play: English - Spanish
    Duration: 31 min


     

     


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