CFW's 5 for 5 Campaign
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Support CFW for just 5$, so little can do so much.
Help us reach people who suffer from CF Globally.
Join the 5 for 5 campaign today!
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CFW Projects |
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CF Data Network Project
An international CF data resource offering services at several levels, with different degrees of technical and management complexity.
Total budget: $190,000
CF Pocket Guide
A resource to encompass all the needs that surround supporting and managing CF effectively.
Total budget: $20,000
CF Podcast Series
Podcast offerings aiming at a wide range of CF conditions and treatments with subtitles in multiple languages.
Total budget: 128,900
CFW Conferences
Regional CF conferences in areas where little is known about CF.
Total budget: $50,000
CFW website
cfww.org is a robust website that receives approximately 400,000 hits per month. On average, over 10,000 unique users visit cfww.org each month from over 80 countries.
Total budget: $40,000
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Education Program
Cystic Fibrosis Worldwide is a provider of Cystic Fibrosis (CF) educational programs for practicing clinicians, allied health professionals and patients/families globally with a focus on developing countries. Currently Cystic Fibrosis Worldwide educates over 2000 clinicians, patients and family members annually through our network of live, interactive, online, and print educational activities. Our clinical experience is both broad and deep with expertise in inpatient and outpatient treatment of CF to include both well-established and emerging topics in addition to education tailored to primary care practitioners, specialists, allied health professionals and patient home therapy.
Read about this program |
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Our Achievements
January 12, 2011 - CFW Programs
 Outline and proposal for an international Cystic Fibrosis Data Network: April 2010
Although national and regional CF data registries publish their results regularly, usually annually, few people would know about all available CF registry information or where it can be found. Potential users range from those with a casual interest, through the CF community of interest, to important external stakeholders such as governments and national and international NGOs.
December 21, 2009 - Conferences
CF Worldwide hosts 1st Annual Balkan Region CF Conference with support from EuroCare CF
The Minister of Health of Macedonia, Dr. Bujar Osmani, opened the Skopje conference to over 200 attendees from multiple countries in the region and CF Doctors from as far away as Norway and the United States. The conference was hosted in collaboration with CF Association of Macedonia and contributing organizations such as CF Europe and EUROCare CF.
March 4, 2009 - CFW Programs
Regional Conferences and specialized workshops
CF is a multi-organ disease and children with CF need multidisciplinary team care in CF centre’s regularly. This multidisciplinary team should consist of a CF Nurse, Pediatric Pulmonologist, Pulmonologist, Gastroenterologist/Nutritionist, Nurse, Physiotherapist, Microbiologist and Psychologist/Social worker who have been trained in the specific needs of patient care. Daily home care that requires both parent and patient participation is also needed to ensure the patients experience a better quality of life and life expectancy. A corner stone to a program that addresses the needs of patients is education that creates multidisciplinary teams and carries that high quality care to the home and daily life of each patient.
March 4, 2009 - CFW Programs
CFW Pocket Guide to the management and treatment of cystic fibrosis
The CFW Resource Guide is an educational resource that is an overview of content of CFW Educational Conferences and Seminars. It is specially designed to meet the needs of developing countries and countries where there is little known about cystic fibrosis. Our main objective is to create a resource to encompass all the needs that surround supporting and managing cystic fibrosis effectively.
February 22, 2009 - Programs
Capacity Building for the CF-SAT
Aim of the Project: To Build capacity of CFW member, CF-SAT
Objective: To develop CF-SAT into an organization that continually expands its resources and programs creating a viable organization long term.
Long term objectives: To improve life expectancy and quality of life for South Asian CF Patients.
June 22, 2007 - Programs
Armenia Program Description
Exact data on the incidence of CF in Armenia is unknown, but there are some reasons to think that it’s one of the most common inherited disorders in region.
Despite this fact, primary diagnostics of CF and treatment of the disease continue stay non integrated and insufficient. Most of the treatment and follow-up are accomplished in different hospitals and clinics throughout Armenia. The diagnoses is made based on the clinical picture, sweat test (on Gibson –Cooke method) and sometimes, though very rarely, upon genetic investigation. (The screening panel consists of only 25 mutations). It is necessary to develop a centralized CF centre and is a top priority in improving the lives of patients living in Armenia.
June 22, 2003 - Programs
Georgian National Cystic Fibrosis Center
The situation in CF related care today in Georgia leaves CF patients with no CF clinical care or delayed service at best and very rarely at the beginning stage. Most people with CF are forced to try to seek care in foreign countries at great financial and moral expense to their families.
There are no training facilities for medical staff, among parents, teachers and nurses of the patients. The basic antibiotics and pancreatic enzymes that most CF patients rely on daily are nonexistent for people with CF in Georgia. While the average life expectancy in developing countries has moved to beyond 32 years, in Georgia the average life expectancy for CF patients is only 16.
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5 for 5 Campaign
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