Capacity Building for the CF-SAT
Program Description

 Cystic Fibrosis Worldwide Programs

 

 
 

Program Description


Cystic Fibrosis Worldwide has put considerable resources to work in India to develop a CF patient association. The Cystic Fibrosis South Asian Trust (CF-SAT) is now a legally established organization. CF-SAT has also been provided with a computer and miscellaneous office supplies funded by a grant from Chiron. The final step in capacity building for the CF-SAT is to provide financial support for the employment of a Health and Social Welfare specialist to act as the Director of CF-SAT and establish a permanent office in Delhi. The objective of the Director of CF-SAT will be to implement the CF-SAT strategic plan that was developed in cooperation with CFW in 2007. CFW will fund only 2 years of operational costs allowing CF-SAT to develop and resource funding to support actual projects detailed in the strategic plan. CFW will have the option to assist in individual projects as requested by CF-SAT utilizing our international network and resources. CFW will also include India in our Educational program planning regional conferences every 2 years. The main priority for CFW is to act only as a support group not to develop, implement or control individual projects. It is our goal to let Indians help India so there is progress and development long term.  


Team members working in India:
Health and Social Welfare specialist in India, Program Director for CF-SAT
The role of the Program Director will be to analyze, develop and implement the CF SAT existing Strategic Plan, develop and implement a fundraising plan, establish a permanent office with staff in Delhi and expand the existing goals of CF-SAT for future work.

Administrative Assistant
The role of the Admin Assist will be to support the Program Director in all activities

Board of Directors CF-SAT
Supply governance, guidance and support for the Program Director

CF Working Group/India
Work with CF SAT Board of Directors and Program Director developing programs, networking etc.

Indian Volunteers
Support fundraising and program implementation


Role of Stakeholders:  
CFW:
•    Develop initial activity/outcome concept proposal
•    Develop a fundraising program and implement
•    Financially support the program
•    Assist in finding an appropriate Program Director in India
•    Assist with finding and appropriate Admin Assist.
•    Monitor the program over the two year period
•    Provide financial and progress reports to CFW members and program donors

CF-SAT
•    Program development (procedure, method)
•    Report all program activates to CFW quarterly
•    Control funding adhering to budget
•    Report all financial activity to CFW quarterly
.
Duration of project: 2 years (if necessary can be extended to 3 years)

Time table of project:

2008

Develop fundraising plan

2009

Fundraise for the program

January 2010

CFW/CF-SAT Recruit a Program Director for CF-SAT

December 2010

Host a CFW Regional Education Conference in India

2010

Review program progress reports and budget adherence

2011

Review program progress reports and budget adherence

2012

Evaluate program and bring to a close


Estimated Budget (2 years):

Item

Unit cost USD

Total cost USD

Justification

Personnel

 

 

 

Director of CF SAT

$2,000 per month for 2 years

$24,000

Will supervise the development and implementation of the existing Strategic Plan

Office Admin

$700 per month for 2 years

$16,800

Will  work supporting Director of CF-SAT

Functional Expenses

 

 

 

Rent

$500 per month for 24 months

$12,000

Operational Expense

$500 per month for 24 months

$12,000

lights, phone, office supplies

Technical Expense

7,000 annually

$14,000

An additional computer, printer, fax, internet etc.

Travel Expense

$6,000 Annually

 $12,000

It will be necessary for the Program Director to travel to designated sites in India to further analyze and develop projects.

Misc. Expense

$200 per month for 2 years

$4,800

To be used as deemed necessary by CF-SAT

CFW Expense

 

 

 

Travel

$10,000 annually

$20,000

It will be necessary for the CFW ED/Volunteers to travel to India to aid in program implementation

Personnel Salaries

$20,000 annually

$40,000

It will be necessary for CFW to engage staff in the implementation of the project and to monitor progress

Fundraising Expense

 $10,000

$10,000

It will be necessary for the CFW staff/volunteers to work towards fundraising in 2009

Total budget

 

$165,600

Must be raised in 2009 prior to program implementation

Tentative project addition

100,000 annually

200,000

Funds to support projects developed by CF-SAT for the first 2 years

 
 

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Conferences
December 5, 2011: CF Worldwide Middle East Conference
June 6, 2011: Annual Meeting of CFW Members
July 30, 2010: 23rd National Cystic Fibrosis Family Education Conference
June 16, 2010: 33rd European Cystic Fibrosis Conference
May 14, 2010: 5th European Conference on Rare Diseases (ECRD)

+ All Conferences

Programs ARCHIVE
V 2011 (1)
   V January (1)
V 2009 (4)
   V December (1)
   V March (2)
   V February (1)
> 2007 (1)
> 2003 (1)

     
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