KEY ACTIVITY AREA 1 – Capacity Building for Cystic Fibrosis Associations globally
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Goal 1
Cystic Fibrosis Worldwide supports capacity building for Cystic Fibrosis Associations internationally. |
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Objective 1:
Encourage the creation of national Cystic Fibrosis associations that support programs that work to improve the lives of persons with cystic fibrosis.
Strategies:
• Develop Governance frameworks (By-Laws, registration)
• Develop strategic plan templates (business and fundraising plans)
• Support organisational/board development (lobby for parent and community support)
Objective 2:
Develop sustainability for newly formed Cystic Fibrosis Associations
Strategies:
• Develop international network (Cystic Fibrosis Worldwide members, partners and WHO)
• Develop network for families from developed countries to “adopt” families from developing countries
• Educate board members and volunteers (How to write grants, hold events and find corporate funding)
• Support association workshops, meetings and conferences
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