KEY ACTIVITY AREA 2 - Educate parents, people living with cystic fibrosis and Medical, Health Professionals in the treatment of cystic fibrosis
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Goal 2
Administer global education programs that incorporate analysis and evaluation of each country to make programs specific and targeted to achieve a favourable outcome. |
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Objective 1:
Disseminate education among medical professionals, parents and persons living with cystic fibrosis to ensure appropriate treatment. Reinforce clinical and home therapy and care by training collaboratively i.e. parents – physiotherapists, persons with cystic fibrosis, nutritionist, whenever possible.
Strategies:
• Analyse at least 2 countries per year
• Run educational workshops for persons with cystic fibrosis, parents and medical/health professionals on a needs specific basis.
• Encourage the development of multidisciplinary teams
• Evaluate outcomes from education program
• Operate a granting program for health care providers to obtain an enhanced knowledge of cystic fibrosis centre
Objective 2:
Support the development of appropriate treatment models.
Strategies:
• Evaluate information collected during the analysis
• Collaborate with local medical/health professionals to develop appropriate treatment plans
• Encourage the involvement of health ministries and opinion leaders to assist with the sustainability of the treatment plans
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