CFW Programs

KEY ACTIVITY AREA 4 - Act as a key source of international cystic fibrosis information and resources

	Goal 4 Provide a platform for the exchange of information eliminating language barriers and opening lines of global communication among parents, people with cystic fibrosis and health care providers in the management of cystic fibrosis.

Objective 1:
Offer a public forum via the Cystic Fibrosis Worldwide website and newsletter that relays current information and facilitates access to professionals to share knowledge, experiences and the latest developments

Strategies:
• Maintain a multi-language website (Forums, Publications, member updates, Press Releases, conference news)
• Deliver the Cystic Fibrosis Worldwide newsletter 3 times per year
• Develop a program for an annual seminar to be held in conjunction with Cystic Fibrosis Worldwide meetings

Objective 2:
Develop member networks

Strategies:
• Produce a member newsletter quarterly
• Produce online updates and information via email
• Offer ways for members to participate or partner in programs

Back to Top