CFW Programs

KEY ACTIVITY AREA 5 - Support cystic fibrosis clinical care development with a focus on developing countries

	Goal 5 Provide a network able to assist in the development of clinical care and specialized treatment of cystic fibrosis in countries without appropriate care facilities

Objective 1:
Support the development of specialized cystic fibrosis care centres in existing hospitals that will be maintained by domestic health care programs and local donors

Strategies:
• Assist in the development of a sustainable program
• Lobby government, opinion leaders and decision makers for support of cystic fibrosis care
• Utilize networks to assist collection of equipment, supplies and funding to establish clinics
• Evaluate the program outcomes to ensure continuous improvement

Objective 2:
Improve daily care for people with cystic fibrosis to increase quality of life

Strategies:
• Facilitate the supply of necessary equipment for daily care
• Develop a model to train medical/health professionals to work towards establishing home care
• Develop home treatment plans with people with cystic fibrosis, parents and medical professionals
• Lobby for support of home care for people with cystic fibrosis

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