Exact data on the incidence of CF in Armenia is unknown, but there are some reasons to think that it’s one of the most common inherited disorders in region.

Despite this fact, primary diagnostics of CF and treatment of the disease continue stay non integrated and insufficient. Most of the treatment and follow-up are accomplished in different hospitals and clinics throughout Armenia. The diagnoses is made based on the clinical picture, sweat test (on Gibson –Cooke method) and sometimes, though very rarely, upon genetic investigation. (The screening panel consists of only 25 mutations). It is necessary to develop a centralized CF centre and is a top priority in improving the lives of patients living in Armenia.
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Summary
As Program Director for CF Worldwide (CFW), I had the privilege of attending a CF conference in New Delhi on February 19th-21st. The Conference, hosted by Dr. S.K. Kabra of AIIMS, Hafeez Ahmed, representing the CF South Asian Trust and by Solvay Pharma, India, offered both a Medical and Scientific agenda for professionals and a Lay conference for parents of children with CF. For CFW, the conference provided an opportunity to seek insight and explore the possibilities of assisting India in improving the quality of life and life expectancy for people born with CF.
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The situation in CF related care today in Georgia leaves CF patients with no CF clinical care or delayed service at best and very rarely at the beginning stage. Most people with CF are forced to try to seek care in foreign countries at great financial and moral expense to their families.

There are no training facilities for medical staff, among parents, teachers and nurses of the patients. The basic antibiotics and pancreatic enzymes that most CF patients rely on daily are nonexistent for people with CF in Georgia. While the average life expectancy in developing countries has moved to beyond 32 years, in Georgia the average life expectancy for CF patients is only 16.
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