CF Tube Launched

CysticFibrosis.com created and launched CF Tube in January 2007. Inspired by the popular Youtube.com, CF Tube is a broadcast compilation of instructional, educational, inspirational and personal video casts. To view videos or to upload your creative inspirations visit: www.CysticFibrosis.com.

6500RedRoses.Com

Become one of 6,500 people to hold a red rose, pose for the camera, and show how much you care about finding a cure for CF. Bob Bendz plans to collect photographs of 6,500 to raise awareness and support for CF. To participate arrange a photography session with Bob or take your own photograph. Visit www.6500redroses.com to review photography submission guidelines and to fill out the participation form and photo consent release form.

CF Foundation Releases CF Center Health Outcomes

The Cystic Fibrosis Foundation now posts health outcomes data from each CF Foundation-accredited care center at www.cff.org. CFF is providing this information to educate the CF community about care center outcomes and foster stronger partnerships between people with CF, families and care center staff. To review CF Centers or for more information visit www.cff.org or call (800) FIGHT CF.

New Statistics Show CF Patients Living Longer

The median age of survival for cystic fibrosis (CF) patients has risen to 36.8 years, up from the previous year’s figure of 35.1 years. The new median age of survival is based on 2005 data that includes date of birth, date of death, gender and date of diagnosis. A detailed CF Foundation Annual Patient Registry Data Report will be available to the public this fall.

Solvay Pharmaceuticals, Inc. Awards CF Scholarships

Solvay Pharmaceuticals, Inc. selected 40 students with cystic fibrosis (CF) to receive the 2006-2007 CREON ® Family Scholarship. Each student receives $2,000 per year for up to two years of study and a year's supply of CREON® MINIMICROSPHERES® (pancrelipase delayed-release capsules, USP) and SourceCF ® Softgels Multivitamins. Solvay Pharmaceuticals has funded the program for 14 years and has awarded nearly $2 million to over 300 students. Scholarships are awarded to students based on academic achievement, financial need, leadership qualities and the ability to serve as a role model to others with CF. All U.S. citizens with CF who are high school seniors, vocational school students or college students are eligible to apply. Applications are available at CF treatment centers nationwide each year from March through June.

Bonnie Strangio Education Scholarship

The Bonnie Strangio Education Scholarship was established in 2005 to honor the memory of Bonnie Strangio. The scholarship will be awarded to a person living with cystic fibrosis who, like Bonnie, has an upbeat personality and “can-do” attitude and shows a tremendous passion for life in achieving their goals despite battling CF. For criteria and deadline information as well as an application visit: http://www.cfscholarships.com/bonnie_strangio_scholarship.html.