Dear Friend from Lebanon,
Thank you for your question. This is actually quite difficult to
answer because everyone has different enzyme requirements. However,
your individual dose requirement can be worked out according to
your symptoms. Pancreatic enzyme supplements are required in cystic
fibrosis mainly because of their lipase content (the fat digesting
enzyme). Therefore your Kreon needs to be taken with all meals,
snacks and drinks that contain fat. The more fat in the food/drink
contain, the higher the dose of Kreon required. For example, fried
fish and chips would need a higher dose than roast chicken and vegetables.
Unfortunately, it is impossible for me to say what your doses are,
as everyone is different. It is best to start with a low dose and
gradually increase the dose according to the fat content of what
you are eating and the control of symptoms indicating fat malabsorption.
You should aim to only have your bowels opened once to twice daily
and stools should be a normal darkish colour and not pale, greasy
or fatty looking. If you are cautious in increasing your dose of
Kreon you should not end up taking too many. The most common symptom
of taking too many is constipation and abdominal pain. In the UK,
we advise that the intake of Kreon should not exceed one capsule
per kilogram body weight. This would mean a maximum of 43 Kreon
per day for you. Many patients however do not need to take as many
as this and your deal dose should be worked out as I have described
above.
I hope that this answers your
question
Kind Regards,
Sue Wolfe, Nutritionist
What do I feed my baby?
Dear Dr.
My baby is 7 months 2 weeks old, she weighs 7.300 Kg (16.09 pounds),
and is 70.5 cm tall (27.7 in). She weighed 6.200 kg (13.66 pounds)
when she was 4 months, 6.500 kg (14.32 pounds) when she was 5 months,
6.800 kg (15 pounds) when she was 6 months, and in her 7th month
she weighed 7.300 kg (16.09 pounds) and her cranial perimeter was
43 cm (17 inches). I am worried about her feeding. What is advisable?
At this moment I am giving her the following:
Milk + cereals. Between 592 and 739 cc (4.16 - 5.20 Gills) per day.
Supplement: 44 cc (0.31 Gills) of pap made with potatoes and vegetables,
milk and butter, 44 cc of stewed peach.
Could you tell me what I can give her to increase her weight? How
much milk should I give her on average per month? How many cc's
of supplements? In case of using olive oil, how much could I add
to her food?
Thank you,
Milagros Cardenas
Lima, Peru
Posted - Jul
16 2004: 20:20:03
Dear Milagros Cardenas,
Thank you for your question regarding the growth of your baby and
how much she should be eating. I have plotted your growth measurements
on an English growth chart. From this I can see that she is a long
baby and that her weight gain has been normal over the last two
months. This all indicates that at the moment she is receiving adequate
nutrition for growth, which is very good. At her age I would expect
her to be drinking at least 600mls of formula milk a day, which
from your figure she is. I would also expect that she should be
having food (of the type you describe) three times daily. As she
gets older, her food intake should increase rather than her milk
intake so she moves towards the type of diet a young child would
have. If her weight gain slows down the most important thing would
be to make sure that she is digesting dietary fat adequately. You
do not mention whether she takes pancreatic enzyme supplements,
however presuming she does the dose should be adjusted so that she
has normal formed stools that are not greasy or fatty. If her weight
gain is still poor (which it isn't at the moment) you could try
adding some olive oil to her food, as you mentioned. One teaspoon
(5cc) per food item will be enough. Remember that this is 100% fat
and therefore if your little girl takes enzymes the dose will have
to be increased if olive oil is added.
I hope that this response reassures
you and answers your question.
Kind Regards,
Sue Wolfe, Nutritionist