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CFW UPDATE

CFW Celebrity Golf Tournament Raised € 25,000

Office manager, Gina Steenkamer


The CFW 2nd Annual Celebrity Golf Tournament was held at in Etten Leur, The Netherlands.

The Heerensocieteit van Etten tot Leur, a gentleman’s society has agreed to continue to support CFW by holding an annual CFW Celebrity Golf Tournament. Again, this very
enthusiastic group gathered support through friends, associates and by working with a Dutch organization known as Charity and Sport. Many Dutch celebrities attended this event, such as Hein Vergeer, Louis van Gaal, Willy and René van de Kerkhof.

First Lady of Georgia, Sandra Roelofs (formerly of the Netherlands), and her son donated an oil painting that they created to be auctioned off during the event.

This charity event, again held at the Wouwse Plantage Golf Course October 22, 2004, raised funds to educate a specialized CF team to staff the new clinic in Georgia. Rabobank sponsored lunch which began at 12:30 p.m. The tournament tee time started at 14:00 with eighteen teams registered. The weather was beautiful and all delegates were in a good mood, especially with all guests being invited to dinner and drinks at 18:00.



Conference Crete

Date Time Meeting
Saturday June 18, 2005 14.00 – 18.00 Board of Directors
Sunday June 19, 2005 9.00 – 17.00 Board of Directors
Monday June 20, 2005 9.00 – 17.00 Board of Directors
Monday June 20, 2005 19.00 Welcome reception
Tuesday June 21, 2005 9.00 – 17.00 CFW Annual Business Meeting
Tuesday June 21, 2005 19.30 Presidents’ dinner
Wednesday June 22, 2005 9.00 – 17.00 CFW Lay programme
(workshops)*
Thursday June 23, 2005 9.00 – 12.00 CFW Board of Directors
Thursday June 23, 2005 9.00 – 12.30 CFE Annual business meeting
Thursday June 23, 2005 13.00 – 14.00 CEO meeting with Board of Directors CFW
Thursday June 23, 2005 15.00 – 16.00 Nurses, Nutritionist, Physio meeting with Board of Directors CFW
Friday June 24, 2005 9.00 – 10.00 Advisory board meeting with Board of Directors CFW
Friday June 24, 2005 10.00 – 17.00 Board of Directors CFW

* Cystic Fibrosis is currently working on the implementation of the lay conference program on June 22, 2004. In collaboration with CFE and ECFS we are building a program of workshops and lectures. We hope to inform you about this final program in due course. Please check our website for the latest updates on the conference: www.cfww.org