Editon 4 Volume 2 CFW Newsletter
Do you have questions or comments about this newsletter?
Contact the Editor! We love hearing from you.

Editor@cfww.org 

All articles are available in three easy to use formats to read off line!
PDF Print and Zip formats also available for off line reading and printing
PDF, Zip files and Print version!

Contents:
From the Editor's Desk
Ella Weggen
PDF Zip Print
Available in:
English Spanish German French Portuguese
Greek
line Mailbag
PDF Zip Print
Available in:
English Spanish German French Portuguese
Greek
Scientific /
Medical Topic
A Possible Anti Pseudomonas aeruginosa Conjugate Vaccine
Anna Rüdeberg
PDF Zip Print
Available in:
English German Portuguese Greek Hindi
line New Approaches to Therapy
Christopher Boyd
PDF Zip Print
Available in:
English Spanish German French Portuguese
Country Close Up
Turkey
Özgür Örscekic,
Deniz Dogru
PDF Zip Print
Available in:
English German French Portuguese Greek
Birmingham Conference
Lecture Highlights: Part 2
Emma Wicks
PDF Zip Print
Available in:
English Spanish French Dutch Portuguese
Greek
Book Review
For Love of Life - Laura Scott Ferris
Dawn McGuinness
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
Hindi
CFW Update
Elections CFW Board
Herman Weggen
PDF Zip Print
Available in:
English Spanish German Italian French
Dutch Portuguese Greek
line CFW Golf Tournament Raised Eur 25,000 / Conference Crete
Gina Steenkamer
PDF Zip Print
Available in:
English French Dutch Portuguese Greek
line Update on Georgian Clinic
Georgia Brown
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
Hindi
line Fundraise Project
Christine Noke
PDF Zip Print
Available in:
English Spanish German French Portuguese
Greek
Solidarity Fund
Solidarity Fund Criteria
PDF Zip Print
Available in:
English Spanish German French Portuguese
Greek
line 2004 Solidarity Fund Recipient
Khatuna Mgebrishvili
PDF Zip Print
Available in:
English Spanish French Dutch Portuguese
Greek
Levy Lecture II
What the Future
Holds for CF
James Littlewood
PDF Zip Print
Available in:
English Spanish German Italian French
Dutch Portuguese Greek
CFW Grant Application
From Croatia to Denmark
Duska and Dorian Tjesic - Drinkovic
PDF Zip Print
Available in:
English German French Portuguese Greek
Personal Experience
The Art of Attitude
Peter Hatch
PDF Zip Print
Available in:
English German Italian Portuguese Greek
Hindi
CFW Partner
International Nurse Specialist Group CF
Su Madge
PDF Zip Print
Available in:
English French Portuguese Greek
CFW Comic
Food is important
Matthew Scott Carr
PDF Zip Print
Available in:
English German Italian Portuguese Greek
Hindi
Snippets
My big fat Greek (CF) Retreat
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
line Juggling Cystic Fibrosis
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
CF Internet Resource
Innovative new website features educational and community content for CF patients
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
line Doctors Launch Online System for Kids with Cystic Fibrosis
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
Research News
The CF Foundation Urges All States to Include Newborn Screening for Cystic Fibrosis
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
line Novel therapy has positive effect on lipid uptake in cystic fibrosis patients
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
line NZ develops cystic fibrosis drug
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
line Indie Band Simon Apple releases new album 'River To The Sea’
PDF Zip Print
Available in:
English Spanish German Italian Portuguese
Subscription
Subscribe today and receive this Newsletter mailed to your door (English)
CFW UPDATE

Herman Weggen

Elections CFW Board

Herman Weggen, President CFW

Dear readers of the Newsletter,

On 21 June 2005, at our Annual Meeting in Crete, there will be elections for members of the Board of Directors. The bylaws state in article I,”The corporation’s Voting Members shall be national cystic fibrosis organisations.”

At our Annual Meeting in 2002 in Genoa, it was decided that ICF(M)A and IACFA would merge on 1 January 2003. At the same meeting a Board of Directors was elected. According to the bylaws, article II, section 3,”two of whom shall be elected for a term of two years, and three of whom shall be elected for four years.” As CFW has made significant changes, it was clear for me that the Board should have specific capabilities. In 2002, I composed a job description and invited every member country to nominate new candidates. Since there were no nominations, the existing Board was re-elected.

I am very glad to hear that almost all members appreciate the direction and the change CFW is making. There is a lot of support for the work, mainly done by Christine Noke our project manager and Gina Steenkamer our office manager. While they do a good job, we need CFW to continue to grow and develop a more solid foundation. It requires a solid Board where several capacities are fulfilled. This will allow the many on-going tasks to be divided among the team members and carried out in an effective manner.

After the Annual Meeting in 2004, some members asked me to come forward with a team that I would like to work with. I hesitated because we are a democratic association. But what if I should not do it? Even after a written call for nominations, the national associations have not nominated any new members the past few years. Finally, after discussing this with the Board, I decided to approach possible new candidates.

What were the leading principles for my choice?

1. The job description
2. Commitment to work approximately 10 hours a month for CFW
3. Ability to contribute to the main tasks, which in my opinion are
a. Policy making for CFW
b. Building a network that can support CFW project activities
c. Search for funding possibilities
4. Regional representation
5. Balance between men/women
6. Continuity for the coming years

I am very glad that I can present five nominees for the board of CFW.

- Mitch Messer (Australia)
- Joe Goforth (United States)
- Peggy Green (Canada)
- Ulrica Sterky (Sweden)
- Katarina Stepankova (Slovak Republic)


Mitch Messer has worked very hard the past two years to build up a solid financial administration for CFW together with Gina. He is a person with CF and very committed with CFW. He is the president of Cystic Fibrosis Australia and lives in Perth, Australia.

Joe started to work for CFW a year ago. I asked him to focus primarily on contacts with the Latin-American countries. He did a good job and his overview is growing more and more. He showed interest and commitment and the ability to work in a team. Joe’s daughter Katelyn died of CF five years ago. Joe is project manager at SourceCF and lives in Alabama, United States.

Peggy Green is the past president of the Canadian Cystic Fibrosis Foundation and a physiotherapist. She is a CF sibling and lives with her family in Nova Scotia, Canada.

Ulrica Sterky is the mother of a son with cystic fibrosis. She is a board member of the Swedish Cystic Fibrosis Association and a nurse. She lives with her family in Göteborg, Sweden.

Katarina Stepankova is a mother of two sons with cystic fibrosis. She is the president of the Slovak CF Club and a dentist. She lives with her family in Kosice, Slovak Republic.

Enrique Sliver and I will continue. Our term continues to 2006.

I am convinced that the members of CFW will elect a productive and professional board in June in Crete.

Herman Weggen, president
The Netherlands
Email: president@cfww.org

line

Print this article
[click here]

for a printable version of this article

Article translated by: NAME
Contact:

See the complete list of translators who helped in this newsletter