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From the Editors Desk
Sam Hillyard
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CF Clinical Research:
A journey with a Destination

(Versión en Español)

Andre Cantin MD
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Meeting Review:
Genome Medicine:
Gene Therapy for the Millennium

(Versión en Español)
Anna Rudeberg
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Timing for Referral for Lung Transplantation
Arie Auggarten, MD
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Update on the
Merge into CFW

Mitch Messer
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Quality of Life in CF:
Implications for
Ethical Dilemmas

(Versión en Español)
Dr Elizabeth Chapman
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ICF(M)A Newsletter
September 2001

Herman Weggen, President
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Treating Depression in
Adults with CF

(Versión en Español)
Lynda L Ison, MS
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Personal Experience:
The Big "D":Dreary Despair of Depression
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Personal Experience:
Living and Singing with CF

(Versión en Español)
Indigoblue
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And the Question is ? ? ?
The 5TMutation in the CFTR Gene
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Book Review:
What they don't tell you

Susan Sawyer and
Charlotte Roseby
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Burke P Bear: Update
Bob and Linda Derr
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Hygiene Awareness:
The "Wash" Hands Button/Badge
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Mailbag: Letters to the Editor
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Burke P Bear

Burke P Bear

Update


World Ambassador Burke P. Bear Raises over $106,000 for CF Research

He's the perfect gift for all occasions, and his goal is to bring a little love, peace, and having fun throughout this terror-torn world in addition to helping to cure Cystic Fibrosis. He's Burke P. Bear, the inspirational teddy bear who was named after Burke P. Derr, a Pennsylvania teenager who died due to CF in 1997.

Burke P. Bear was proclaimed "The Pennsylvania Ambassador for Love, Peace, Having Fun, and Curing Cystic Fibrosis" by the PA House of Representatives in June 1999. Through the Pennsylvania Cystic Fibrosis, Inc. (PACFI) 'Million Dollar Bear' campaign and 'Burke's Tour', the Ambassador of Love (as he's been dubbed by journalists) has toured 32 states and several world countries including England, Thailand, the United Arab Emirates, Russia, Greece, Nepal, Israel, Argentina, Uruguay, Chile, Brazil, and Australia. His goal is to raise millions for CF research and to spread his ambassador's message: Love each other, live peacefully, have fun, and help cure CF.

The Pennsylvania Association of Medical Suppliers (PAMS) is helping PACFI with the campaign/tour. PAMS has sold over 1800 Burke P. Bears in raising funds for CF research. Signed Burke P. Bears, along with a copy of the Burke story, can be ordered through the PAMS website at www.pamsonline.org.

We have received many heart-warming messages from people who tell us that Burke P. Bear has a magical ability to make everyone "feel just a little bit better." That means a lot to us, because our Burke had a special spirit that touched everyone he met.

People who are interested in hosting Burke P. Bear in their state or country can contact PACFI through the methods listed on our website at www.pacfi.org. The site also has many photos from Burke's world travels.

Lots of love, peace, and having fun to all!
Bob and Linda Derr, PACFI
(Burke's Dad and StepMom)
www.pacfi.org


Robert and Linda Derr with Tom RidgeBob and Linda Derr presenting former Governor Tom Ridge (now the Director of the Office of Homeland Security) with his very own Burke P. Bear



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Editors Desk
| CF Clinical Research | Meeting Review | Timing and Referral for Lung Transplantation |
Merge Update | Quality of Life in CF | ICF(M)A Newsletter | Treating Depression in Adults with CF |
Personal Experience:The big D | Personal Experience: Living and Singing with CF | And the Question is? |
Book Review | Burke P Bear Update | Hygiene Awareness | Mailbag | Subscribe here | CFW Home