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Contents:
Mailbag
Questions & Answers
CFW Update
Charitable Art Gallery Supports CFW Mission line Breath… A Precious Gift line Lebanese Cystic Fibrosis Patient receives life saving medication via CFW line CFW Invited to Join Million Artists Project line From Nispen to Rome & From Paris to Istanbul line Reflections on Children Exhibition in Genoa, Italy line International Nurse Specialist Group-CF Update line CFW Sponsors Nutrition & Physiotherapy Workshop in Eastern Europe
Alternative Medicine
Acupuncture and the Treatment of CF
Progress & Awareness
The Brazilian Cystic Fibrosis Study Group line CF Foundation Develops Congressional Cystic Fibrosis Caucus in the USA line Defeat Cystic Fibrosis
Programs
CF.DOC - A Web-based Interactive Model of Care
Pain Management
Relaxation, Imagery, and Distraction
Medical/Scientific
Burkholderia Cepacia Complex (BCC) in a Buenos Aires Hospital line Something New Out of Africa: Cystic Fibrosis Affects All Peoples line Cystic Fibrosis Diagnosis During Infancy: a Balancing Act line Bone Disease in Cystic Fibrosis
Events
Cystic Fibrosis Teen & Adult Day Retreat
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Q: My husband is a 36-year old healthy CF male. He takes Tobermycin daily as part of his inhalation; and when he has an infection he takes Cipro (750 mg twice a day), plus Azithromycin. The Cipro however causes severe stomach upset, diarrhea etc. - making it quite unpalatable to take and usually resulting in him taking it for just a few days because he just can’t tolerate it. Is there something else that could work as effectively as Cipro to control occasional lung and sinus infections?

A.H., Canada

A: I do not know if there is an alternative to Cipro, this matter should be discussed with your clinic doctor. However, I have had a number of patients who have had similar experiences to your husband that have benefited by taking live yoghurt or similar products. Presumably this works by helping to re-establish healthy gut bacteria that are being killed by the Cipro. I hope this helps.

Kind Regards,
Sue Wolfe, Nutritionist

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Q: Is it possible that CF (particularly when the symptoms are intestinal) could be missed diagnosed as Irritable Bowel Syndrome (IBS)?

Anonymous, USA

A: It is very unlikely that a GI presentation of CF would be misdiagnosed as IBS as you would not get the severe symptoms of fat malabsorption with IBS. If there are overt signs of fat malabsorption or poor nutritional status or a history of recurrent chest infections the possibility of CF should be investigated.

Kind Regards,
Sue Wolfe, Nutritionist

 

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