Founded by movie producer Steven Spielberg and General H. Norman Schwarzkopf, the Starbright Foundation has been set up to help children with serious illnesses (including CF) to communicate with each other and learn about their own condition.
The website: www.starbright.org contains information on how to purchase CD-Roms such as "Cystic Fibrosis: Fitting CF into Your Life Every Day" and videos on topics such as preparing for re-entry into school, 'cracking' hospital life, and communicating with your doctor.
The videos and CD-Roms are free to children and teenagers (and their families) in the USA and Canada. A donation of $25 per item or $60 per set (plus postage and packing) is requested for orders from elsewhere in the world.
The Starbright Foundation also has a network connecting patients from 95 children's hospitals in North America, which also offers access to youngsters being treated from home. Children and teenagers with CF can apply to be part of this community. Membership is again FREE.
Once a member, the network can be accessed from any PC with AOL. Then once on board there are facilities for chat, email, bulletin boards, making friends, learning about different medical conditions (including their own), websites and games.