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Staff & Advisors

Editor
Jill Weinstein
CFW Advisor
Bob Williamson
Brenda Button
David Reid
Dieter Rossboth
Eileen Widerman
Harry Heijerman
Joanne Schum
Scott C. Bell
Sue Wolfe
Susan Madge

Newsletters

English

Edition 13

Mailbag

• DELTAF508/5T-13TG MUTATIONS

Physiotherapy

• Physiotherapy in the planning stage, during pregnancy and the post-natal period in cystic fibrosis

Book Review / Transplants

• Lung Transplants Through the Patients Eyes

Cystic Fibrosis Associations

• Living with Cystic Fibrosis in Poland

Medical / Scientific

• Advances in airway inflammation: Clinical implications for cystic fibrosis

Treatments / Scientific

• What do cyanide, garlic and marine algae have to do with CF treatment?

• Treatment Burden: Weighing up the costs and benefits

Data Registry / Member Associations

• Australian Cystic Fibrosis Data Registry

Medical / Scientific

• Stem Cell Therapy for Cystic Fibrosis?

• Identification of Burkholderia cepacia complex bacteria

• Appetite Stimulants Use in Cystic Fibrosis

Genetics / Screening

• Genetic carrier testing for cystic fibrosis among CF family members

Caregiving / Personal Experience

• The expert CF patient: reality or lip service?

Spotlight on the CF community

• Melissa middleton: A true global explorer

Book Review

• Sixty Five Roses: A Sister's Memoir

Nutrition

• Prevention of Essential Fatty Acids Deficiency as a Part of Nutrition Therapy in Patients with CF

Snippets

• CF Realty Network

• Cough Frequency Data to Act as a new outcome measure in evaluating treatments for CF

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