The newsletter is a good way to let you know about CF
Worldwide developments. We are growing and our mission to improve CF
care in developing countries has provided all of us with an important
task. As you are aware, the infrastructure of good health care makes
an enormous difference for people living with CF. Governments in developing
countries along with the non-government organizations (NGOs) have increasingly
larger burdens to respond to. We work to ensure that this “rare
disease” is understood and that its significance is found on their
agendas.
 |
I enjoy introducing Dawn McGuinness, a new assistant editor
for the CFW Newsletter. Dawn has contributed already by providing book
reviews and by writing articles for the Newsletter. I look forward to
her continued participation. One article that I find interesting in
this newsletter is an overview of the latest approaches to CF therapy.
This article is especially helpful for people that do not have access
to current knowledge, recent developments, or possible resources that
may become available. Of course, it is useful for all of us to read.
People with CF need to have great perseverance in order
to stay healthy. The amazing thing is that most of the people I know
with CF are really positive people and a pleasure having around. In
this newsletter, you will meet such a person. His name is Peter Hatch
and he offers some good tips about books with a positive message.
I have put quite some effort in the Newsletter in the
last couple of months, and hope that my ever improving skills as Editor
provide the enjoyment and learning that have our readers looking forward
to each issue. I would like to thank everyone who has helped me with
this edition. We will publish 3 Newsletters in 2005 so that more funding
can be allocated to proposed projects. Please don’t hesitate to
contact me, as your advice and support are important to all of us at
CFW.
This photo is of me, my brother Rick and my sister Hanne.
They are, together with my parents, very important to me.
My brother Rick gives me the purpose I have in working for CFW. I still
miss him every day.
Kind regards,
Ella Weggen
The Netherlands
