First European Cystic Fibrosis Awareness Day
MAJOR SUCCESS ALL OVER EUROPE
Better awareness and more support for Cystic Fibrosis patients in Europe

On 21 November 2006 Cystic Fibrosis Europe, a federation representing 30.000 patients in 30 European countries, organized its 1st “European CF Awareness Day”. Cystic Fibrosis (CF or mucoviscidosis) is the most frequent life threatening genetic disease in Europe. Sticky mucus blocks the respiration and digestion. Without an expensive and time consuming treatment children with CF suffocate! Although patients who have access to appropriate care can become 40 years and older, children who live in countries where the CF care is less developed or available still die at a very young age! With the 1st European CF Awareness day we wanted to fight for equal access to appropriate care for all children and people living with this disease in Europe!

New in the IPG/CF:
• Updated IPG/CF List of the National Contact Persons
• IPG/CF Newsletter, January 2007
• Physiotherapy in the Treatment of CF. An excellent resource. Available in English, Spanish and now also in Greek.
• European Best Care Scholarship, 2007 Application Form

Lopen Voor Lucht (Walking for Air):
From Nispen to Rome
THE NETHERLANDS - In June 2007, Marc Bastiaensen will start a 2200 kilometer walking tour from his birthplace of Nispen, a small village in the south of The Netherlands, to Rome. His journey will take him through Belgium, Luxemburg, Germany, and Switzerland before arriving in Italy. He aims to raise 100,000 Euro for CFW and estimates that the walk will take four months. Many people have accomplished this walk - but this one is different. Marc has CF.

Marc and his brother Patrick teamed up to start the organization “Walking for Air” to help promote his tour. The brothers heard about CFW’s project in India/South Asia and decided that the fruits of their labor would go towards developing the South Asia CF Trust.

For more information, click here.

The Great COFE your heart out!
From Paris to Istanbul - July 2007
A remarkable and inspiring Dutch born 41 year old Australian man with CF is plan¬ning an epic bicycle journey across Europe in order to raise awareness and funds for CF Research. His name is Walter van Praag. The Great COFE stands for Cystic Orient Fibrosis Express. The route was inspired by a brochure of the Orient Express Bicycle Tour and roughly follows the 4000 kilometer route of this famous train journey. Walter and his team hope to average 60 kilometers per day and will visit many towns in many European countries.

More information at http://cofe.pledgepage.org/

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In this issue:

Acupuncture and the Treatment of Cystic Fibrosis
The Brazilian Cystic Fibrosis Study Group
CF Foundation Develops Congressional Cystic Fibrosis Caucus in the USA
CF.DOC - A Web-based Interactive Model of Care
Relaxation, Imagery, and Distraction
“Defeat Cystic Fibrosis:” A Student project for increasing CF knowledge and helping ill people
Burkholderia Cepacia Complex (BCC) in a Buenos Aires Hospital
Something New Out of Africa: Cystic Fibrosis Affects All Peoples
Cystic Fibrosis Diagnosis During Infancy: a Balancing Act
Bone Disease in Cystic Fibrosis
And more...

CFW Member Countries: Czech CF Association has new website and contact information
Charitable Art Gallery: Children
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