Cystic Fibrosis Worldwide (CFW) is a non-profit organization which has its registered office in Massachusetts, USA . CFW is dedicated to improving quality of life and life expectancy for people living with cystic fibrosis (CF), a genetic life-threatening disease. Cystic Fibrosis Worldwide began our mission to aid people born with cystic fibrosis in 2002. Since our inception we have reached out globally focusing on developing countries and countries where little is known about CF. This has led a path across the globe reaching people in countries such as Oman, Palestine, India, Armenia, Macedonia and Brazil to name a few.

CFW enables access to knowledge and appropriate care to those people living with CF and among medical professionals and governments worldwide focusing on countries where local health systems are limited in the support they can provide.

CF Worldwide works to bring long term solutions via Educational conferences, Capacity building programs, Clinical development, international lobbying efforts and by creating a global network. We continue to reach higher and work harder in efforts to aid people born with CF now living without access to necessary medication, treatment or equipment. We work against time, we work with a dedicated effort and we work to win the battle. Join CFW by donating to our programs and lets win this fight together!


Our Leadership

Mr. Terry StewartMr. Terry Stewart
Board President and CEO of Cystic Fibrosis Worldwide
Terry is the former Chief Executive Officer and Company Secretary, Cystic Fibrosis Australia, Chairman of Cystic Fibrosis Australian Data Registry Committee and Cystic Fibrosis Clinical Directors Meetings, Executive Position on all Australasian Cystic Fibrosis Conference Committees. Administrator – Australian Cystic Fibrosis Research Trust. With an open mind on expanding and leading CFW into areas where CF has limited professional approach to improving the lives of people with Cystic Fibrosis.  Terry founded and ran successful businesses in areas of engineering and property development and brings together a broad wealth of business experience.

2015 Letter from the President – 5/24/2016

Mitch MesserMr. Mitch Messer
Board President and Treasurer of Cystic Fibrosis Worldwide
Mitch is an experienced executive, who has served in senior leadership roles as a Chief Executive Officer (CEO) and Board member for a number of organizations over many years. He is a past President of CF Worldwide and currently the CEO of Clan WA, an organization that works to enhance resilience, encouraging healthy relationships, effective parenting and community participation in Western Australia.As a consumer advocate, Mitch is passionate in his belief that we can only truly drive improved health outcomes by ensuring health systems have a consumer focused culture. He believes that CF Worldwide plays an important role in helping to spread knowledge about CF and to finding ways to support and empower people facing the daily challenge of living with CF, especially in parts of the world that do not have the benefit of comprehensive CF care.
Aisha RamosMrs. Aisha Ramos
Board Member CF Worldwide & Latin America Project Committee
Director of the Spanish CF Association, Federación Española de Fibrosis Quística and member of CF Europe, Spain
Dr. Horst MehlDr. Horst Mehl
Board Member of CF Worldwide, Father of a boy who suffers from CF
Honorary President and Board Member of CF Association Germany, Mukoviszidose e.V.
Member of German CF Research Group
Catherine ArcherCatherine Archer
Board Member of CF Worldwide
Has a family member with CF and brings Global Marketing, Branding skill and experience to our international needs.


Cystic Fibrosis Worldwide Education Team

Dr. Harry Heijerman
Chief Medical Advisor to CF Worldwide and Board Member
Dr. Harry HeijermanConsultant Adult Pulmonology Department of Medicine, Founding member of the European CF Society, Editor of the CF Journal and Director of the Hague Teaching Hospital – Netherlands
Dr. Ian Balfour-Lynn
Dr. Ian Balfour-LynnCF Worldwide Medical Advisors and Education Team
Paediatric Respiratory Medicine
Royal Brompton Hospital, England
Dr. Anne Munck
Dr. Anne MunckPediatric Gastroenterology
Director of Pediatric CF Center
Paris member of European CF Society
Executive Board of Directors France
Ms. Sue Wolfe
Chief Pediatric Dietitian
Ms. Sue WolfeRegional Paediatric Cystic Fibrosis Unit
Leeds General Infirmary, England
Mrs. Alison Morton
Clinical Specialist Dietitian
Alison Morton
Alison Morton Bsc (Hons) SRD
Leeds General Infirmary, England
Leeds Adult Cystic Fibrosis Centre
Joint Chair Cystic Fibrosis Interest Group
Committee member of the European Cystic Fibrosis Nutrition Group
Member of the European Cystic Fibrosis Society and a member of the Scientific Planning Committee for the European Cystic Fibrosis Conference
Dr. Susan Madge
Consultant Nurse
Dr. Susan MadgeDepartment of Nursing Royal Brompton Hospital United Kingdom
Mrs. Louise Lannefors
Louise LanneforsFounding member of the International Physiotherapy group for CF (IPGCF)- Sweden